If you have cystic fibrosis and are over the age of 18 or you are the parent of a child with CF, we want to hear about your or your child’s health-related needs and quality of life. We are conducting a study to better understand changes people with CF are experiencing not only in their physical care and symptoms, but also in their personal lives, including their emotional, social, and financial well-being. Results will inform future CF care and research. Please take this survey by July 30. Respondents may choose to enter a random drawing for a $25 Amazon gift card.
Take the survey »
|
|
|
|
Teens Come Back Together to Advocate for PASTEUR
|
|
|
More than 60 teen advocates from across the country — 25 of whom live with CF — participated in the Foundation’s 14th Annual Teen Advocacy Day on June 23. In more than 135 meetings with members of Congress, teens asked their lawmakers to co-sponsor and pass the PASTEUR Act, a bipartisan proposal that, if passed, would revitalize the global marketplace for novel antibiotics.
Read the news story »
|
|
|
Do You Have a Disaster and Emergency Preparedness Plan?
|
|
|
New Spanish Webinar on YouTube
|
|
|
How a Small Regional Hospital Helped Me Realize the Value of CF Care
|
|
|
Cystic fibrosis is a complex disease and requires a team approach. On the CF Community Blog, Laura Steuer shares how she didn’t realize how much her CF care team has her back until she stayed in a hospital where the staff had little knowledge of the needs of someone living with cystic fibrosis.
Read Laura's story »
|
|
|
|
WE WILL NOT REST UNTIL WE FIND A CURE
|
|
|
|
www.cff.org
4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US
|
| Got this as a forward? Sign up to receive our future emails.
Opt out of this mailing list | Opt out of all CFF emails
|
|
|
This email was sent to [email protected].
To continue receiving our emails, add us to your address book.
|
|
|
|
