The latest information for June 23, 2022


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The Latest in Cystic Fibrosis Research

We invested
$6 million in Carbon Biosciences ([link removed])
to support their preclinical research into an innovative gene therapy approach for cystic fibrosis that has the potential to provide a treatment for all people living with CF, regardless of mutation. Carbon Biosciences is the first company to launch from the Foundation’s collaboration with Longwood Fund, part of the Foundation’s Path to a Cure initiative.

Read more about Carbon Biosciences » ([link removed])




Our 2021 Annual Report

From the approval of Trikafta® for children ages 6 through 11 to the Foundation’s first-of-its-kind $110 million investment for genetic therapies for cystic fibrosis, we achieved so much in 2021.
Explore our 2021 Annual Report ([link removed])
to learn how together, we are making progress toward a cure for all people with CF.

Read the Annual Report » ([link removed])


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CF Foundation Submits Comments to the FDA

The Foundation
submitted comments ([link removed])
to the FDA’s draft guidance to improve clinical trial diversity. We advocate for incorporating inclusion throughout the entire drug development process, discuss considerations specific to rare disease trials, and recommend specific measures to improve enrollment and retention of trial participants from diverse and underrepresented populations.

See the Foundation ([link removed])




FDA Authorizes COVID-19 Vaccines for Children Ages 6 Months and Older

Last week the FDA granted emergency use authorization to Pfizer-BioNTech’s COVID-19 vaccine for children ages 6 months to 5 years, as well as to Moderna’s COVID-19 vaccine for children ages 6 months to 17 years. The CF Foundation encourages all children with CF to get the COVID-19 vaccine when they are able.

Find a vaccine site » ([link removed])


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WE WILL NOT REST UNTIL WE FIND A CURE


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www.cff.org ([link removed])

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