The latest information for June 2, 2022


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Our Commitment to Equity, Racial Justice, Diversity, and Inclusion

Over the past two years, we have worked to better understand the needs and barriers that exist for people of color with cystic fibrosis, their families, and the broader community rooted in known health disparities through efforts such as working groups and listening sessions. The thoughtful feedback we receive helps to inform our overall work so that we can further our mission to provide all people with CF the opportunity to live long, fulfilling lives. To better communicate the core principles that inform the Foundation’s ongoing work both internally with staff and with externally facing programs, we are formally updating
our commitment to equity, racial justice, diversity, and inclusion ([link removed]).

Read the statement » ([link removed])




CF Foundation in Times Square

Spreading CF awareness doesn’t stop in May!
In celebration of 65 Roses Day ([link removed]), we’re proud to be featured on the Nasdaq Tower in Times Square. The display is live now through Sunday, June 5.

See the display » ([link removed])


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Tell Congress: Make Expanded Health Insurance Affordability Policies Permanent

Time is running out for Congress to permanently expand the enhanced subsidies that have helped ensure access to high-quality, affordable health insurance coverage for people with cystic fibrosis who rely on the Affordable Care Act’s individual marketplaces.
Take action now and urge Congress ([link removed])
to make these expanded affordability policies permanent.

Contact your legislator » ([link removed])




Becoming the Role Model I Wish I Had

Growing up, Joey Pelletier felt alone being gay and having cystic fibrosis. On the
CF Community Blog ([link removed]), he shares how he eventually found people who understood and supported him, and how he aims to be there for others going through a similar experience.

Read Joey ([link removed])


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COVID-19 Boosters Now Authorized for Children Ages 5 to 11

In case you missed it, the U.S. FDA authorized boosters of the Pfizer-BioNTech COVID-19 vaccine for children 5 to 11 years old. Your child is eligible to receive a booster if it has been at least five months since they received the second dose of the Pfizer-BioNTech vaccine.

Find a vaccination site » ([link removed])




WE WILL NOT REST UNTIL WE FIND A CURE


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