Racism & health event, apps & research ethics, anti-eugenic future
May 26, 2022
Anti-Black Racism, Health & Health Care: A Reckoning--and a Path Forward
Virtual Event on June 9
Join us for a discussion on a path forward to redress the harms of anti-Black racism in health and health care. The virtual event will feature the editors of a recent Hastings Center special report, including Hastings senior advisor and fellow Faith Fletcher, of Baylor College of Medicine, and Hastings fellow and board member Michele Goodwin, Chancellor’s Professor and Director of the Center for Biotechnology & Global Health, University of California, Irvine School of Law. The event and the special report are supported by The Greenwall Foundation. Learn more and register. Read the special report.
The App Update Problem Research Ethics Confronts the Growing Use of Apps
With a significant increase in the use of apps in medical and behavioral research, best practice standards are needed for ethics oversight of app updates. A good starting point is to distinguish between minor updates (e.g., a change in screen color), updates that require prompt notification (e.g., requests for additional information from users), and significant changes (e.g., affecting privacy) that may require a re-review by an institutional review board, concludes a new article in Ethics & Human Research. Readthe article.
Building an Anti-Eugenic Future Keeping History from Repeating Itself
Eugenics ideas shaped aspects of science, medicine, and politics throughout the 20th century, and its legacy persists, states a recent commentary in The Lancet co-authored by Hastings Center senior advisor Rosemarie Garland-Thomson. “Societies must remain vigilant for the danger of repetition.” Read the commentary.
Upcoming Events
"What Can Intersectionality Bring to ELSI? Transforming Theory into Practice." A talk by Hastings Center presidential scholar Lucas Matthews at ELSICon2022. June 1.
"Cultivating Just and Equitable Genomics Research Partnerships with Community Health Centers." A talk by Hastings Center research scholar Carolyn Neuhaus and Johanna Crane, of Alden March Bioethics Institute, at ELSICon2022. June 2.
"The Impact of Receipt of Genetic Test Results for Autism." A panel discussion with Hastings Center research scholar Erik Parens and colleagues at ELSICon2022. June 2.
"Anti-Black Racism, Health & Health Care: A Reckoning--and a Path Forward." A Hastings Center event. June 9.
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