The latest information for May 19, 2022
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Tell Congress: Pass the PASTEUR Act
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Antibiotic-resistant infections are one of the biggest threats facing people with cystic fibrosis. The Pioneering Antimicrobial Subscriptions to End Upsurging Resistance (PASTEUR) Act would tackle this issue directly by jumpstarting the development of desperately needed new antibiotics.
Send a message to your members of Congress today ([link removed])
to urge them to pass the PASTEUR Act without delay.
Act now on PASTEUR » ([link removed])
Struggling to Process My Son's Rare Mutations
Cambrey White struggled emotionally after learning that following negative carrier and newborn screens, her son had cystic fibrosis. On the
CF Community Blog ([link removed]), she shares how she is now advocating for people with rare CF mutations.
Read Cambrey ([link removed])
Hear from CF Research Experts on Science Sessions Podcast
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JP Clancy, vice president of clinical research at the CF Foundation, joined a panel of CF experts and an adult with cystic fibrosis on the
Proceedings of the National Academy of Sciences “Science Sessions” podcast ([link removed]). The episode explores the recent developments and future research directions in treating CF.
Listen to the podcast » ([link removed])
Additional COVID-19 Tests Available from USPS
Residential households in the U.S. are now eligible for another
order of free at-home COVID-19 tests from USPS ([link removed]). Each order includes eight rapid antigen COVID-19 tests.
Order COVID-19 tests » ([link removed])
WE WILL NOT REST UNTIL WE FIND A CURE
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