Speaking About SUDEP: Arming the Rare Epilepsy Community with the Latest Research

Tuesday, June 14, 2022
3-4 pm CST
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This free webinar will discuss what we know about SUDEP, specifically in the rare epilepsy community, as well as what parents and caregivers of children with rare epilepsies should know about SUDEP prevention and ways to mitigate risk. Presenters will share ideas on how to discuss SUDEP with doctors, from both the perspective of a physician and a parent of a child diagnosed with a rare genetic epilepsy who has educated themselves about SUDEP and taken steps to reduce the risk of SUDEP for their child. Attendees will have the opportunity to ask questions to all presenters. The webinar will also include a discussion about the latest advancements in basic and clinical epilepsy research focused on SUDEP risk and prevention.

This webinar is conducted in partnership with our friends at PAME and Wishes for Elliott.

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Our mission is to find a cure for epilepsy, by promoting and funding patient-focused research. CURE Epilepsy is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.
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CURE Epilepsy · 420 Wabash Ave, Ste 650 · Chicago, IL 60611 · USA