April 29, 2022

Pete Shanks, Biopolitical Times | 04.28.2022

New opinion polls on human enhancement technologies find that Americans regard them “with a degree of caution and uncertainty." As with all such surveys, the results should be taken with a grain of salt. 
Sean Brenner, UCLA News | 04.14.2022
CGS Advisory Board member Alexandra Minna Stern has been named Dean of Humanities at the University of California, Los Angeles. Stern, currently associate dean for humanities at University of Michigan, is the founder and co-director of the Sterilization and Social Justice Lab. Her research has explored the history of eugenics in the US and Latin America, and the cultures and ideologies of the far right and white nationalism.
Kalina Kamenova and Hazar Haidar, Voices in Bioethics | 01.08.2022
Responses to the first baby’s birth using polygenic risk scores on IVF embryos show growing awareness of these tests’ unethical aspects, including false representation of their accuracy and their potential to lead to a eugenic future that normalizes discrimination based on people’s genes.
Watch the recording of last week’s Stanford School of Medicine Antiracist Virtual Community Conversation with the Fatal Invention author, law and sociology professor, and member of the CGS Advisory Board.
HUMAN GENE EDITING | SURROGACY360 | PRENATAL GENETIC TESTING
ASSISTED REPRODUCTION | EUGENICS | POLICY
HUMAN GENE EDITING
Smriti Mallapaty, Nature | 04.27.2022 
China’s State Council has asked research institutions to expand and improve their ethics training. The directive is aimed at addressing gaps in oversight exposed when Chinese researcher He Jiankui shocked the world by creating the first babies with edited genomes in 2018.
Antonio Regalado, MIT Technology Review | 04.26.2022 
CRISPR creator Jennifer Doudna says that the technology should not be used for heritable genome editing right now and recognizes the need for “widespread societal consideration of the implications of that type of use to make heritable changes in human beings.”
Conor Murray and Pia Singh, The Daily Pennsylvanian | 04.21.2022 
Top university officials allegedly manipulated an investigation, removing all allegations against program director James Wilson. Two decades ago, Wilson led a gene therapy trial that caused the death of teenager Jesse Gelsinger, and was banned from working on clinical trials for five years. Now he heads a leading gene therapy program and is building an empire of biotechnology companies. "He is untouchable," said one employee involved with the investigation.
SURROGACY360
Amrit Dhillon, South China Morning Post | 04.16.2022
The Surrogacy Regulation Act outlawed commercial surrogacy in India in December 2021. Though some worry about the emergence of a black market, one doctor argues that the law is fair and protects surrogates and newborns.
PRENATAL GENETIC TESTING
Azeen Ghorayshi, The New York Times | 04.21.2022
Preimplantation genetic testing leads people undergoing IVF to discard thousands of embryos each year, but new research questions the accuracy of these tests, as implanting some “abnormal” embryos has resulted in healthy live births.
GenomeWeb | 04.20.2022
Despite the warning, industry analysts suspect that it will have limited effect on NIPT developers.
FDA | 04.19.2022
The FDA is warning patients and health care providers about the risks of false results with widely used genetic non-invasive prenatal screening tests. None have yet been authorized, cleared, or approved by the FDA, and the tests may give false results.
ASSISTED REPRODUCTION
Jessica Hamzelou, MIT Technology Review | 04.26.2022
A new technique means eggs can be grown from the ovaries of transgender men, even after years of testosterone therapy. It could offer them new ways to start a family.
Amy Dockser Marcus, The Wall Street Journal | 04.25.2022
The FDA has long prohibited donations from men who acknowledge having had a male sex partner within the previous five years. Families, medical groups, and sperm banks are asking the agency to make it easier for gay and bisexual men to be donors.
Naomi Cahn and Sonia Suter, The Hill | 04.23.2022
The Colorado Senate is considering legislation that would give donor-conceived people the right, once they turn 18, to learn the identity of their donor. It would also limit the number of families who create children through any particular donor.
U.S. Donor Conceived Council | 04.19.2022
Most U.S. sperm banks do not follow industry guidelines or best practices that protect the needs and interests of donor-conceived persons. This reiterates the urgent need for proper regulation of the donor gamete industry to protect donor-conceived people and their families.
EUGENICS
Collin Binkley, The Columbian | 04.26.2022
A new report details how the nation’s oldest and wealthiest college profited from the slave trade throughout its early history.
Josh Moody, Inside Higher Ed | 04.25.2022
Emory will remove the name of Robert Yerkes, a eugenics supporter, from a research facility currently known as the Yerkes National Primate Research Center, and rename two professorships in the school of law that are named for L. Q. C. Lamar, whom the university described as a “staunch defender of slavery.”
Joseph Goldstein, The New York Times | 04.22.2022
The formula, which helps estimate kidney health, has been discarded by many hospitals. But some judges still use it to decide whether to release those potentially endangered by Covid-19. Adjusting the kidney-function scores of Black prisoners amounts to “race-based discrimination.”
Alan Goodman and Joseph L. Graves, Jr., Sapiens | 04.14.2022 
The falsehood of biological race persists because those in power need a way to explain very real inequalities in wealth, health, and other important indicators as if they are natural outcomes of human differences, rather than the result of racist policies, laws, and institutions.
POLICY
Nancy Scola, Politico | 04.28.2022 
Nelson has taken on the job of considering what advances in science and tech are for, and who is served by them. Nelson is not just being asked to fill the role of OSTP director. She is being asked to remake it.
Walter G. Johnson and Diana M. Bowman, STAT News | 04.22.2022 
The U.S. should follow Australia and the U.K. in taking the next responsible, cautious steps forward with mitochondrial replacement therapies.

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