Big Data During Covid, Animal-to-Human Transplants, "Breakdown in Humanity", New Summer Program

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** February 8, 2022
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** Big Data During Covid
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** Ethical and Legal Issues in Health Data Research
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Research projects involving Big Data have accelerated since the Covid-19 pandemic struck, and they have helped drive scientific breakthroughs. But health data in research raises ethical and legal questions, including about consent and confidentiality. Such questions become even more pronounced in a pandemic. A framework for managing these issues, published in Ethics & Human Research, proposes integrating ethical values and principles into the project at the design stage, and following other practices, such as providing public-facing information throughout the project. Read the article ([link removed]) .
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** New: Summer Bioethics Program for Underrepresented Undergraduates
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Applications are being accepted for The Hastings Center Summer Bioethics Program for Underrepresented Undergraduate Students, which will take place online from June 6-10. The program is for students who are underrepresented in bioethics, including but not limited to communities of color, Indigenous communities, residents of rural areas, and students with disabilities. Accepted students will receive a stipend and will have the opportunity to engage with distinguished scholars from around the country, develop skills in explaining and justifying their views on numerous topics and learn how to listen with respect to divergent views. Application deadline: March 22. Learn more and apply ([link removed]) .
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** Animal-to-Human Organ Transplants
Considering How--and How Fast--Research Should Move
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The use of animal organs for humans has a long, dramatic, and often disappointing history. Following recent transplants with pig organs, Hastings Center research scholar Karen Maschke considers ethical, regulatory, and policy questions about how medical research studies with patients who have end-stage organ disease should proceed—and how quickly. For example, she says in an interview with Science News, expanding access to animal organs through a Food and Drug Administration “expanded access/compassionate use” treatment pathway could make it harder to find volunteers for clinical studies, potentially slowing down scientific discovery about the transplants. Maschke says, “you don’t want to derail the science—and the science is incremental.” Read the Science News article ([link removed]) .
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** "Breakdown in Humanity"
Takeaways from "Righting the Wrongs: Tackling Health Inequities"
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Pulitzer Prize-winning author Isabel Wilkerson last month told an audience of over 2,600 people at the health equity summit that one of the consistent outcomes of empirical studies is that too many medical professionals still believe that Black and brown people do not experience pain to the degree that white patients do and are less likely to receive pain medicine, even if they have end-stage cancer. “This is a complete breakdown not only in medicine; it’s a breakdown in humanity.” Read more ([link removed]) .


** Upcoming Events
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"Comprehending Personhood in the Context of Rehabilitative Medicine." A talk by Hastings Center research scholar Erik Parens in the Weill Cornell Division of Medical Ethics Lecture Series. February 17 ([link removed]) .

"Is It Possible to Have Healthy People on a Sick Planet?" Gary Cohen will present the Callahan Annual Lecture, April 19 ([link removed]) .

"Ethical Issues We Have Faced Over the Pandemic and Lessons Learned." A talk by Hastings Center President Mildred Solomon at Yale.May 11 ([link removed]) .

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The Hastings Center seeks to ensure responsible health and science policy and practice. We work to secure the wisest possible use of emerging technologies and fair, compassionate, and just health care for people across their lifespan.

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