The latest information for January 13, 2022
The latest information for January 13, 2022
Together Communtiy Update

Thursday, January 13, 2022

You're Invited to our National Annual Meeting

We all dream of the day when CF stands for Cure Found. Join us Thursday, January 27 at 8 p.m. ET for our second National Annual Meeting to hear from President and CEO Michael Boyle, MD, as we celebrate the progress made in 2021 and hear his vision for this year. You will also have the chance to ask Foundation leaders your questions about our ongoing efforts to advance a cure for CF, support the community, and provide high-quality care. We hope you can join us!

What's New In Cystic Fibrosis Research

We are excited to kick off the new year with several funding awards for the development of potential treatments for people living with cystic fibrosis.
  • We awarded $5 million BiomX to conduct a Phase 1b/2a clinical trial for a potential phage therapy in Pseudomonas aeruginosa infections.
  • To study the potential use of inhaled colistin as an additional option to treat Pseudomonas aeruginosa infections, we awarded $4.7 million to EnBiotix Inc.
  • As part of our Path to a Cure initiative, we invested in SalioGen Therapeutics to support preclinical research into a novel genetic therapy that could benefit everyone with cystic fibrosis, regardless of their mutation.
  • Finally, we awarded up to $3.5 million to Arrevus Inc. to test a potential treatment for pulmonary exacerbations in a late phase clinical trial.
Our vision is a cure for every person with cystic fibrosis and a life free from the burden of this disease. We will not leave anyone behind.

How I Learned to Let Go as a Parent of a Child with CF

As Abby Alten Schwartz's daughter became a teenager, she found it difficult to let her manage more of her cystic fibrosis care on her own. With the help of a therapist, Abby shares how she learned it wasn't her place to nag her about doing her treatments anymore.
  We will not rest until we find a cure  
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