From Health Affairs Today <[email protected]>
Subject Narrative Matters: To Uncover My Mother’s Genetic Disorder, I Had To Lead The Way
Date December 17, 2021 9:01 PM
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Podcast: CMS's new national health care spending data from 2020
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The Latest Research, Commentary, And News From Health Affairs

Friday, December 17, 2021

Dear John,

In this month's Narrative Matters essay, a genetic counselor uses her
own resources to identify the root cause of her mother's changing
personality.

Narrative Matters:
Genetic Counseling

[link removed]

In her Narrative Matters essay in the December issue of Health Affairs,
Shivani Nazareth describes her quest to find the genetic underpinnings

of her mother's dementia.

After initial pushback from her mother's doctor when Nazareth
requested genetic testing, Nazareth conducted extensive research and,
armed with her own knowledge as a genetic counselor, convinced the
doctor to go forward with a test. It ultimately revealed a genetic
mutation that results in the slow accumulation of an abnormal protein in
the frontal lobe of the brain-the part that controls personality.

"I was, in fact, relieved to have an answer to a lifetime's worth of
questions," Nazareth writes.

However, payment is a barrier for many who could benefit from genetic
testing. Despite growing interest and advances in genomics and precision
medicine, genetic counselors are not recognized as Medicare providers
and cannot bill for their services under the program, leaving older
adults without private insurance to pay for genetic counseling services
themselves.

Want to listen to authors read their own Narrative Matters essays? Check
out our Narrative Matters podcast
.

Today in Health Affairs Forefront, Lori Uscher-Pines and Lucy Schulson
describe how the pandemic-era flexibility that allowed audio-only
telehealth visits

to be reimbursed as telehealth may be inadvertently leading to
substandard care for those it was meant to serve.

Richard Sorian discusses Bob Dole's strategy

for success in pushing through major health system reforms and the
lasting imprint Dole left on Medicare.

In case you missed it, Health Affairs recently rebranded our blog to
Health Affairs Forefront . The
mission will stay the same: Create a space for rigorous, action-oriented
insights related to health policy research, ideas, and current policy
events.

Listen to our latest podcasts .
On today's episode of This Week
,
Rob Lott and Chris Fleming discuss CMS's 2020 national health care
spending data, which was published by Health Affairs this week.

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Your Daily Digest

To Uncover My Mother's Genetic Disorder, I Had To Lead The Way

Shivani Nazareth

Podcast: To Uncover My Mother's Genetic Disorder, I Had To Lead The Way

Shivani Nazareth

Rethinking The Impact Of Audio-Only Visits On Health Equity

Lori Uscher-Pines and Lucy Schulson

How Bob Dole Left A Lasting Imprint On Medicare

Richard Sorian

Podcast: New National Health Spending Data and Introducing Health
Affairs Forefront

Rob Lott and Chris Fleming

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New National Health Spending Data and Introducing Health Affairs
Forefront

Listen to Health Affairs' Rob Lott and Chris Fleming discuss CMS's 2020
national health care spending data and the rebrand of Health Affairs
Blog to a new digital publication, Health Affairs Forefront.

Listen Here

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