Dear Friend,
I wanted to share some good news: Last week, the House passed my ACT for ALS bill with an astounding 423-3 vote.
ACT for ALS will give those suffering with this cruel disease swifter access to promising, innovative treatments.
It revolutionizes our approach to neurodegenerative disease and serves as a marker for the right type of healthcare policy and reform.
We’ve worked for three years to bring this bill to fruition and we hope to see it become law soon.
The most encouraging part of this process has been the tremendous outpouring of support from families, friends, advocates, researchers, and most especially the patient-heroes. They drive the hope.
We will keep fighting this disease. We keep fighting for better policy. We keep fighting for the right solutions. It’s about getting things done. Please know I’m here to help.
If you are interested in helping us, please let us know:
