October 31, 2019

Making "All of Us" Research Truly Inclusive

The Hastings Center is co-leading a new project to examine recruitment and retention of participants in the National Institutes of Health’s All of Us Research Program, an unprecedented initiative to collect genetic and other health-related data from at least one million people living in the United States. This project will focus on a research site that is a health center that serves primarily Latino and African American patients — groups historically underrepresented in research – to identify strategies to build engagement. The project, funded by the National Human Genome Research Institute of the National Institutes of Health, is led by Hastings Center research scholar Carolyn Neuhaus and by Johanna T. Crane of Albany Medical College. Read more.

In the Media: Is It Ethical to Genetically Modify Species to Save Them from Extinction?

Gene editing and other advances in biotechnology are offering new possibilities for conservation biology. But how do we balance the urge to save animals and plants against a revulsion for over-humanizing nature in an already humanized world? In an interview in Longreads, Hastings Center research scholar Gregory Kaebnick explains why he doesn’t consider the genetic modification of species for conservation purposes to be either unnatural or unethical. Read the article.

In the Media: How Gene Editing Could Affect Families

CRISPR gene editing has the potential to wipe out some kinds of disease, but it could impose momentous obligations on parents. In an interview with Deseret News, Hastings Center director of research Josephine Johnston explains how gene editing and other scientific advances could affect families. Johnston is co-editor with Erik Parens of the new book, Human Flourishing in an Age of Gene Editing. Read the article.

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