Join us online to discuss how being disabled is a source of creativity, experimentation, and community in their lives and work...
** INVITATION:
Disability as a Creative Force
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Join us on Wednesday, October 20, 4:30-6:30 Eastern time for an online event: “Enjoying: Disability as a Creative Force,” the fifth in a series of public events produced by The Hastings Center and supported by the National Endowment for the Humanities. To experience “disabled joy” is to feel pleasure, abundance, and fulfillment because of—not despite—disability. In this webinar, artists and writers Jerron Herman, Georgina Kleege, and Julia Watts Belser will discuss how being disabled is a source of creativity, experimentation, and community in their lives and work. Learn more and register.
WATCH AND LEARN MORE
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** Who Will Be There to Care If There Are No More Nurses?
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The pandemic has laid bare the significant shortcomings of a health system rooted in an unsustainable financial model that exploits the physical and emotional labor of its nurses. Nurses are not an endless resource… (read more)
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** Genomic Research on Human Behavior and Achievement
Four takeaways from discussion for journalists
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New research on genomic influences on human traits such as intelligence, household income, and sexual behavior is newsworthy and of high public interest. But covering the research findings can be a challenge, risking misunderstanding and misuse. How should journalists report on the latest findings responsibly? Four takeaways emerged during an online discussion for journalists on October 12 presented by The Hastings Center in partnership with the Center for ELSI Resources & Analysis (CERA).
1) The stakes are high to get the story right. “We’re talking about the genomic influence on human traits... that have been used to justify eugenics, sterilization, genocide, the worst atrocities,” said Amy Harmon, of The New York Times, who moderated the discussion. “So that really weighs on my when I’m thinking about how to approach a story.”
2) The science is not settled. There’s a lot of dissent among scientists studying the genomic effect of human behavior about how the data should be parsed.
3) Scientists and journalists must work together to communicate responsibly about what the science does and does not show.
4) It remains to be seen whether genomic data should be used to shape social policies centered around inequality.
Panelists were Erik Parens, a Hastings Center senior research scholar; Melinda Mills, a genetic scientist at Oxford University; and Arbel Harpak, a population geneticist at the University of Texas, Austin. Watch a video of the event.
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** Eric Cassell Remembered
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The Hastings Center mourns the passing of Eric Cassell, a pioneer in patient-centered care and a Hastings founding fellow and former board member, on September 24, at age 93. Dr. Cassell wrote prolifically on medicine’s moral issues and care of the dying, tracing his early insights into pain, suffering, and the doctor’s proper role in their treatment to his participation in 1971 in The Hastings Center’s Task Force on Death and Dying.
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** Event Calendar
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"Abortion Clinics Dwindle While Deceptive 'Crisis Pregnancy Centers' Thrive: Epistemic Justice Concerns and Policy Solutions," a presentation by Hastings Center project manager/research assistant Danielle Pacia at ASBH. October 15
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"Toxic Treatments and Transgenic Rats: The Ecological Dimensions of Disability Art," a presentation by Hastings Center Rice Family Fellow Liz Bowen at ASBH. October 16
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"The Many Facets of Moral Distress Across Health Care Settings," a presentation by Hastings Center research scholar Nancy Berlinger at University of Pennsylvania. October 19 ([link removed]) .
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The Hastings Center seeks to ensure responsible health and science policy and practice. We work to secure the wisest possible use of emerging technologies and fair, compassionate, and just health care for people across their lifespan.
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