In 1993, Roland Johnson, one of the founders of Self-Advocates Becoming Empowered, gave a famous speech called “Who’s in Control?” In this speech, Johnson talked about how people with disabilities — not our service providers or staff — need to have control over our lives. Medicaid uses quality measures to find out whether someone’s services are good or bad. But how do we measure who is in control? ASAN’s new toolkit “Who’s in Control?”: Control over community services for people with disabilities [[link removed]] explores this question.

For this toolkit, ASAN brought together a group of self-advocates who use home- and community-based services, to discuss how to measure who is in control: the person receiving services, or their staff? “Who’s in Control” explains the common themes in our discussions, and suggests 12 questions that researchers can use to make sure people with disabilities are in control of our own services.

This toolkit answers questions like:

*
What
are
long-term
services
and
supports?
*
What
are
institutions?
What
are
home
and
community-based
services?
*
What
are
quality
measures?
*
How
do
people
come
up
with
quality
measures?
*
How
can
we
tell
who
is
in
control
of
their
community
services?
*
What
questions
should
people
ask
to
make
sure
we
stay
in
control?

People with disabilities need to be in control of our services — and we need more ways to measure who is in control. We hope researchers will learn from self-advocates when developing measures on this critical topic.



Autistic Self Advocacy Network
PO Box 66122
Washington, DC 20035
United States

If you believe you received this message in error or wish to no longer receive email from us, please unsubscribe: [link removed] .