With Covid 19 vaccination being rolled out from this weekend for those age 12 to 15 years, we thought it opportune to repeat the earlier advice for those with haemophilia or other inherited bleeding disorders who were preparing for vaccination.
Precautions to be taken by people with inherited Bleeding disorders when receiving Covid-19 vaccination
Specific advice and precautions to be taken by those with inherited bleeding disorders when receiving the Covid-19 vaccine, which is an intramuscular injection have been previously set out by the National Coagulation Centre. They are as follows:
You can download the PDF from our website by clicking here.
Are there specific vaccinates which a PWBD should take or should avoid
The current advice remains that the benefits of any of 3 of the licenced vaccines in Ireland strongly outweigh any risks and that PWBD should take the first vaccine they are offered. There are no specific sub-groups within the population who are currently being advised to take a particular vaccine or not to take a particular vaccine.
Most of the recent concern regarding the safety profile of the vaccines have been focused on the Astra Zeneca vaccine. This vaccine has been linked to rare cases of a particular clotting problem. The information below is the latest available information from the National Coagulation Centre, posted on their website. This follows the review of the safety of the Astra Zeneca vaccine earlier this week by the European Medicines Agency (EMA).
Our understanding is that the 12 nto 15 year old children will be offered the mRNA vaccines from either Pfizer or Moderna.
Brian O’Mahony,
Chief Executive
National Children’s hospital
Building work on the new National Children’s hospital is progressing well with the windows now installed. Photos below were taken today.
Educational Grants 2021 Applications Now Open
We are delighted to announce that applications are now invited for the 2021 Educational Grants.
The Society offers educational grants each year to people with haemophilia or related bleeding disorders, and/or their immediate family members who go on to do a post second level educational course.
The purpose of the grant is to offer financial support to students to assist them with the extra expenses involved with their studies.
** Please note, even if you are eligible to apply for more than one grant, you can only apply for one of them.
You can apply online or you can download the application forms below, and post the completed forms into the office; there is more info on the various grants is available here.
2021 VHI VIRTUAL WOMEN'S MINI MARATHON
REGISTRATION IS NOW OPEN
This year's Women's Mini Marathon will be a virtual event and will take place on Sunday 19th September. You can race the real route of the VHI Women's Mini Marathon in Dublin City from your doorstep, anywhere in the WORLD using a brand new event App
Sign up today and run, walk or jog the Virtual Vhi Women's Mini Marathon, and receive an exclusive finishers t-shirt and a 2021 commemorative medal.
We are very grateful to all the ladies who take part in the Mini Marathon for the I.H.S. every year, your support for the work of the Society is really appreciated. An event like this is so important, not only to raise funds but to raise awareness of haemophilia and other bleeding disorders.
So, if you have a bleeding disorder or if you are the mother, sister, daughter, niece, cousin or friend of an adult or child living with a bleeding disorder, now is your chance to show your support by taking part in this year’s VHI Virtual Women’s Mini Marathon to raise funds for the I.H.S.
To raise funds in aid of the I.H.S. or if you would like more info about fundraising, please contact Nina on 01 6579900 or email [email protected].
Travelling or Studying Abroad?
What You Need to Know....
If you are relocating or studying abroad there is a lot to consider before you travel.
Each country has their own rules and regulations that you must follow to ensure you receive equivalent healthcare to what you receive here in Ireland.
Most countries cover emergency / urgent healthcare that is required while a person is visiting, in accordance with your health / travel insurance. However, this usually does not extend to regular haemophilia treatment and does not cover prophylaxis nor regular on demand therapy.
To help, our outreach co-ordinator Robert has designed a handy and informative infographic to outline all you need to know. You can check it out on our website.
Watch I.H.S. Webinars On Demand
We've been uploading recordings from our ongoing series of webinars so you catch up on the ones you've missed at your convenience
A sample of what we have uploaded so far;
Staying Healthy at Home: Physiotherapy and Exercise Groups with Sheila Roche, St. James’s Hospital
An Update on the National Coagulation Centre with Dr Niamh O’Connell (Oct)
Exercise & Health Session from our Virtual October Conference
Dental Care: The New Normal with Alison Dougall and Laura Parkinson
Heavy Menstrual Bleeding in Adolescent Girls with Dr Geraldine Connolly
Exercise and Physical Activity for Children with Paula Loughnane, Senior Physiotherapist at CHI Crumlin
Dental Care and Nose Bleeds in Children with Dr Kirsten Fitzgerald and Dr. John Russell
Gene Therapy Discussion with I.H.S. CEO Brian O'Mahony & EHC President, Declan Noone
The Role of the Advanced Nurse Practitioner in Haemophilia with Niamh Larkin, cANP
Just to remind you all, that the Hyde Square apartments will continue to be available for members and bookings will be taken as normal.
People with haemophilia or related bleeding disorders from outside of Dublin, when attending St. James’s Hospital or Children’s Health Ireland at Crumlin for treatment, for a hospital appointment or for a review clinic.
An immediate family member, a spouse, a partner and/or child of the person with haemophilia or related bleeding disorder from outside Dublin, when attending St. James’s Hospital or Children’s Health Ireland at Crumlin for treatment, for a hospital appointment or for a review clinic, or while a family member is an in-patient.
To make a booking, please contact us on 01 657 9900*.
