News from the Alzheimer's Research and Prevention Foundation

3rd Quarter 2021

President's Message Is the New Alzheimer's Drug for Real? Dear John, For the first time in over 20 years, the U.S. FDA recently approved a new drug, aducanumab, for Alzheimer’s disease, which afflicts an estimated 6 million Americans. We at ARPF applaud research in all levels of implementation that seek medically effective remedies for this terrible illness. Indeed, patients, their families, caregivers, and the medical profession are in dire need of good news so that our communities may be spared from further devastation by Alzheimer’s. Manufactured by Biogen, aducanumab is an infusion with a $56,000 annual price tag that’s administered intravenously once a month. Marketed under the brand name Aduhelm, the drug’s goal is to reverse memory loss and slow progression towards dementia in patients already experiencing mild cognitive impairment. As a physician and the president and medical director of ARPF, what is concerning me, along with many other healthcare providers, is that aducanumab’s benefit to memory function is still largely unproven. Also of great concern: additional costs associated with administering and monitoring this drug will make aducanumab treatment cost far more than its price tag. The necessary equipment and complicated procedures involved with administering aducanumab will further inflate its cost. The fact is, using this drug will necessitate new training for medical staff and expensive equipment that’s rarely been part of traditional Alzheimer’s care. Since aducanumab was approved, various medical experts have noted that few developed nations are prepared to administer this drug. (An Alzheimer’s Research UK’s May 2021 poll of psychiatrists found that only one-third of physicians believed that they would have the capabilities to administer aducanumab within one year. The rest estimated that it would take up to five years to be ready to administer it.) To read the full article, click here.

Yours in Brain Health, Dharma Singh Khalsa, M.D. President / Medical Director

FOLLOW US Discover all the exciting activities ARPF has in store by visiting us on the web at: alzheimersprevention.org

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Outreach & Education How Preventing Frailty Can Prevent Dementia Webinar

Do you or your loved one experience balance issues or decreased mobility? Although these issues may be common with aging, they are serious concerns for all of us. Lack of mobility accelerates frailty, and frailty can accelerate memory decline. Please join us on Tuesday, July 27th for this outstanding webinar on How Preventing Frailty Can Prevent Dementia presented by Dr. Bijan Najafi. It will be recorded and sent out after.

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Donor Spotlight The Kihlken Family

Laura Kihlken and her family have been longtime supporters of your ARPF. Laura uses her birthday as a platform to generously fundraise in honor of her mother Ann Kuh.  “Watching my loved ones suffer from Alzheimer’s is one of the hardest things I’ve ever done. And if this disease is preventable by diet and lifestyle changes, I think that needs to be shouted from rooftops,” Laura said. We all know someone suffering from Alzheimer’s and how the tragedy affects everyone involved.  “My great-grandmother suffered from Alzheimer’s disease in her eighties. My grandfather passed away from Alzheimer’s at the age of 76. My mother was diagnosed in 2017 at the age of 60. She was one of the proudest and most independent women I’ve ever known and for the past four years, I’ve watched her slowly lose the ability to take care of herself. My dad has done an amazing job transitioning into the role of her primary caretaker, but it’s heartbreaking knowing that their golden years have been stolen from them by this terrible disease. It’s a very difficult path and all you can do is your best. And your best is going to look different on different days. Forgive yourself, and do whatever you can to keep your loved one happy and safe. I’ve found my mom is happiest now if I just sit and hold her hand.”  Read more.

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What Others Are Saying Feedback from Music As Medicine for Your Brain Webinar

We asked: – Was Music as Medicine for Your Brain interesting? – Would you like more webinars on this topic? – Was Dr. Talyor B. Dale knowledgeable?

It was a very interesting program and look forward to more information about Music Therapy! – Sharon S. Thank you so much. This was great– informative and entertaining. I've known all along why I would like to take up some kind of musical training (preferably, piano) hopefully, in the not-so-distant future. – Monique D. I helped to develop an “aging in place” organization for my neighborhood. We are just now planning some approaches to help our members learn how to age “wisely.” As a result of Dr. Taylor’s lecture, we are thinking of starting a music group. I’m grateful for the lecture’s inspiration and stimulation. – Anonymous Fantastic presentation! I was glued to the computer. – Anonymous

Brain Longevity® Specialist Spotlights

Doug Hayward In May of 2008, I was invited to Bethesda, Maryland by the National Institute of Health along with about 100 other Yoga Instructors as a result of my association with Penn State University. There were various presentations and displays ranging from office chair yoga to the medical benefits of yoga. As it turned out, the purpose of the conference was to explore the benefits of practicing yoga and to stimulate the funding of yoga research. The practice was becoming more and more popular, not only from the asanas and Yoga Nidra but also as viable alternatives for medical issues that had not been adequately resolved by the Western medical approach. Read more.

If you’d like to shake things up this year, create a birthday fundraiser for ARPF that everyone can celebrate. Creating a Facebook birthday fundraiser is a popular way to give back to a cause you’re passionate about on your special day. Facebook makes it easy– all you have to do is invite friends and family members to donate to your ARPF fundraiser. Friends from around the globe can take part– it's quick and simple with no exchange rates or banks necessary. If you are interested in holding a fundraiser to support AD prevention, education, outreach or our research initiatives, please contact [email protected]

Do you buy or sell on eBay? You can easily round up your purchase or donate a portion of your sale to ARPF! Just follow the prompts and look for “Alzheimer’s Research and Prevention Foundation.”

Donate Now In Memory/ In Honor Donors April to June Thank you for giving ARPF the opportunity to honor your loved ones and your special occasions. Donor list from April to June.

Your ARPF is honored to be a part of Ever Loved’s memorial website. This is a beautiful way to celebrate a loved one’s life in an elegant, community-oriented memorial fund. Ever Loved makes funeral planning and connecting with providers, friends, and family as simple as possible. If you would like to leave a legacy for your loved one through supporting ARPF research and initiatives, please visit our page. We are so thankful to those who wish to include ARPF during such a sensitive time. We will continue to make strides in Alzheimer’s prevention in memory of all those who have been afflicted by dementia. We are forever grateful.

WORKPLACE CAMPAIGNS ARPF is a proud participant in all workplace campaigns; these are only a few of the better known ones: Aetna Foundation American Express Bank of America Citibank Colgate Discover Expedia GE Google Intuit JP Morgan Chase Lab Corp Liberty Mutual Group Macy’s Mayo Clinic Microsoft Morgan Stanley Paypal/Ebay PepsiCo Sherwin Williams Co. Sony Corporation Starbucks State Farm Insurance Subaru The Coca Cola Co VISA Wells Fargo Whole Foods Market Check with your employer to see if the Alzheimer's Research and Prevention Foundation is on their list. ARPF NOW ACCEPTS ALL THE FOLLOWING DONATIONS Securities and Stocks IRA Charitable Rollover Required Minimum Distribution Donor Advised Funds Your vehicle: car, truck, boat, motorcycle Please contact ARPF’s Vice President Randy Brooks at 1-888-908-5766 or [email protected].

LEAVE A LEGACY: Remember Us in Your Will  If you would like to receive information on how you can leave a legacy to support the Alzheimer’s Research and Prevention Foundation’s critical research initiatives, or to support one of our many other programs, please contact ARPF’s Vice President Randy Brooks at 1-888-908-5766 or by email. ARPF LEGACY SOCIETY Gold Level Mrs. Ethel A. Hoff Dr. and Mrs. Dharma Singh Khalsa Ms. Barbara Joan Davis  Silver Level Mr. and Mrs. Claude and Billye Boucaud Mr. Carl G. Crawford Union Congregational Church Bronze Level Mr. and Mrs. Randy Brooks Ms. Mary Gilbert Mr. Edward T. Haats Mrs. Marjorie Olmstead Shaol and Evelyn Pozez Endowment Fund

Officers and Board Members PRESIDENT/MEDICAL DIRECTOR - Dharma Singh Khalsa, M.D. VICE PRESIDENT - Randal Brooks, MA, LPC TREASURER - Bert Beatty, MHA SECRETARY - Kirti K. Khalsa  MEMBERS - Fletcher Wilkins, BS - Edward Gellert, BSM - Le Craven Executive Staff VICE PRESIDENT OF EDUCATION AND OUTREACH - Chris Walling, PsyD, MBA, C-IAYT SENIOR ADVISOR - Simran S. Stuelpnagel NEWSLETTER EDITOR - Chelsea Pyne Follow Us! Discover all the exciting activities the ARPF has in store for you by visiting us on the web at alzheimersprevention.org, following us on Twitter, ‘Liking’ us on Facebook, following us on Instagram. ARPF is a Proud Member of:

Medical and Scientific Advisory Council CHIEF SCIENCE OFFICER George Perry, Ph.D., Professor of Biology & Chemistry, Chief Scientist, Brain Health Consortium University of Texas at San Antonio, TX  ----------------------------------------------------------------- Daniel Amen, M.D., Director of the Amen Clinics, Costa Mesa, CA Ma Gloria Borras-Boneu, M.D., GRD Health Institute - Barcelona, Spain Hiroko Dodge, Ph.D., Kevreson Research Professor of Neurology University of Michigan, Ann Arbor, Oregon Health & Science University Nancy Emerson Lombardo, Ph.D., Adjunct Research Assistant Professor of Neurology Boston University, School of Medicine, Alzheimer’s Disease Center, Boston, MA Elissa Epel, Ph.D., Professor of Psychiatry, University of California, San Francisco, CA Annie Fenn, M.D., Women’s health specialist & Founder of Brain Health Kitchen, Jackson Hole, WY Karen E. Innes, MSPH, Ph.D.,Professor of Epidemiology, Western Virginia University School of Public Health, Morgantown, WV Richard S. Isaacson, M.D., Director, Alzheimer’s Prevention Clinic Weill Cornell Medical College, New York, NY Sat Bir S. Khalsa, Ph.D., Assistant Professor of Medicine, Harvard Medical School, Brigham and Women’s Hospital – Boston, MA Tejinder Kaur Khalsa, M.D., M.S., FRCP, Senior Associate Consultant, General Internal Medicine, Mayo Clinic, Rochester, MN Miia Kivipelto, M.D., Ph.D., Aging Research Center and Alzheimer’s Disease Research Center, Karolinska Institute - Stockholm, Sweden Karen Koffler, M.D., Medical Director of the Osher Center for Integrative Medicine at University of Miami, FL Helen Lavretsky, M.D., M.S., Professor, Department of Psychiatry, UCLA Semel Institute and Resnick Neuropsychiatric Hospital- Los Angeles, CA Lisa Mosconi, Ph.D., Associate Director, Alzheimer’s Prevention Clinic Weill Cornell Medical College, New York, NY Andrew B. Newberg, M.D., Director, Marcus Institute of Integrative Health –Myrna Brind Center Jefferson University Hospital, Philadelphia, PA Arti Prasad, M.D., FACP, Chief of Medicine, Hennepin Medical Ctr Professor/Vice Chair of Medicine, University of Minnesota Minneapolis, MN Kateřina Sheardová, M.D., Head of the Memory Center ICRC St. Anne´s University Hospital Brno, Czech Republic Michelle Sierpina, Ph.D., Founding Director, UTMB Osher Institute for Lifelong Learning University of Texas Medical Branch Galveston, TX  Leonard A. Wisneski, MD, FACP, Clinical Professor of Medicine at George Washington University Medical Center, Washington, DC

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