I have some sad news to share. Noel Conway, long-time Dignity in Dying
campaigner with motor neurone disease, chose to have the ventilator he relied on
to breathe removed and has died. While he managed to control the final
circumstances of his death with the support of his wonderful hospice team, the
anxiety and uncertainty that Noel and his family experienced could so easily
have been avoided were there an assisted dying law.
Noel spent the last years of his life fighting for a law that would allow him to
die on his terms. A passionate and award-winning campaigner, Noel did all he could to put
assisted dying firmly on the political agenda in the UK. Shortly before he died,
he dictated a powerful final statement that he wanted to share with you.
Read Noel's statement → [[link removed]]
Noel’s court case began in 2017 and was critical in turning the tides among
decision-makers and in the media. Supporters like you came out in their
thousands to support him, sharing stories, letters, words of thanks and a
commitment to stand with Noel. We were all proud to campaign alongside him and
declare, “I’m with Noel”.
When Noel’s case was rejected by the courts, he turned his attention to
Parliament; he lobbied MPs and spoke powerfully to the media about how he felt
the UK’s blanket ban on assisted dying failed him and all terminally ill people.
He undertook this huge commitment knowing any change would most likely come too
late for him.
Noel will be sorely missed by all of us at Dignity in Dying and we extend our
sincere condolences to Carol, their family and friends. Sceptical and determined, Noel was an iconoclast who brought us closer to
having safe, compassionate choice at the end of life.
I know you’ll join me in thanking Noel for all that he’s done for the campaign.
When we change the law, I shall raise a glass to Noel.
Dignity in Dying
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