Watch Our Latest Online Event on Disability and Flourishing
Cure is not what many people with disabilities want or need--that was the message of “Questioning Cure: Disability, Identity, and Healing,” the fourth in a series of Hastings Center events supported by the National Endowment for the Humanities, which took place on May 11. Three disabled writers and educators discussed the promises and pitfalls of cure with insights from their lives and work. Anand Prahlad, a Curators’ Distinguished Professor emeritus in the department of English at the University of Missouri and author of The Secret of a Black Aspie, described the relationship between disability, the trauma of racism, and the dangers of “cures” that attempt to enforce the norms of whiteness and neurotypicality. “In the end,” Prahlad proposed, “it is society that really needs to be cured.” Ann Millett-Gallant, an art historian and disability studies scholar at the University of North Carolina Greensboro, reflected on how her art practice has enabled her to heal from a traumatic brain injury, “refus[ing] any expectations that I could or should return to an imaginary pre-trauma state of ‘wellness'.” Karen Nakamura, a cultural and visual anthropologist at the University of California, Berkeley, examined the ways disabled people “hack” spaces that were not built for them rather than giving in to the conformity promised by cure. “Where we go, ramps get built, quiet rooms at conferences get made, visible fire alarms get installed,” Nakamura pointed out. “Disabled people make the world a better place.” Learn more and watch the event, organized by senior research scholar Erik Parens, Rice Family Fellow in Bioethics and the Humanities Liz Bowen, and Hastings Center senior advisors Joel Michael Reynolds and Rosemarie Garland-Thomson.
Moral Ambiguities and Tensions Around the First U.S. Release of GM Mosquitoes
In a commentary in the Miami Herald, Hastings Center research scholar Gregory Kaebnick discussed the first release of genetically modified mosquitoes in the United States, which is set to occur in the Florida Keys later this year to help prevent serious mosquito-borne illnesses such as dengue fever. The controversial plan is “shot through with moral ambiguities and tensions,” he wrote. For example, “are risks and uncertainties more troubling with genetic technologies? Do we want to be editing nature at all, or do we already in some sense edit nature all the time? Is editing nature by altering a genome fundamentally different from editing nature by, say, spraying insecticide?” While there were many opportunities for public input, including the referendum that approved the release, Kaebnick concluded that the plan should have had “structured, balanced, impartially run public deliberation that would encourage people to learn from experts, share their thoughts and questions, and engage in balanced discussion with citizens who do not share their views.” Read the Miami Herald commentary.
In the Media: Vaccination Deception
If you are fully vaccinated against Covid-19, must you disclose this information when asked? In an interview with NPR, Hastings Center research scholar Nancy Berlinger explored the ethical dimensions of this question. She explained that it is clearly unethical to say or imply that you have been vaccinated if you haven’t; this is a lie that puts others at risk of harm. A vaccinated person who claims to be unvaccinated is also deceiving others, a practice that “is disrespectful and corrosive,” but “unlikely to harm others through transmission.” And a vaccinated person may have valid personal reasons for concealing the fact that they are vaccinated if others close to them are opposed to vaccination. Read the NPR article.
Upcoming Events
"Binocularity: A Conceptual Tool for Comprehending and Respecting Persons." Senior research scholar Erik Parens will be presenting as part of the Montreal Health Ethics Conference Series 2021: Wellness, Health, and Human Flourishing. May 27, 12 pm EST.
"Do Genetic Findings Impact Perceptions of Responsibility?" sponsored by the Center for Research on Ethical, Legal and Social Implications of Psychiatric, Neurologic & Behavioral Genetics and Columbia Irvine Medical Center in collaboration with The Hastings Center. May 28, 9 am EST.
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