Thursday, April 15, 2021

Our Work on Diversity and Inclusion

Recently, as part of our effort to address health disparities in cystic fibrosis and build a more inclusive community, the CF Foundation submitted comments to the National Institutes of Health on improving racial equity, diversity, and inclusion in research. The comments will be used to identify and implement policies, procedures, and practices to support greater diversity and inclusivity among medical professionals and researchers.
Read more »

Register for Gratitude Hour

During National Volunteer Week, take some time for yourself at Gratitude Hour, an hour-long virtual event on Wednesday, April 21 at 7 p.m. ET. Speakers, including Travis Flores, an adult living with cystic fibrosis, and Brenda Jay, a mother of an adult with CF, will share how to reignite your purpose, find motivation, and show gratitude toward yourself and others.
Register for Gratitude Hour »

Now on YouTube: Supporting Your Adolescent's Mental Health During the Pandemic: A Conversation for Parents

The pandemic has been hard on many, including adolescents in the CF community. In case you missed it, our panel discussion addressing your top questions about mental health for tweens and teens in the CF community is now available on YouTube. Please note, this recording includes mentions of mental health conditions such as depression, anxiety, and suicidal thoughts. Viewer discretion is advised.
Watch the recording »

Latest Blog Post: The Unseen Struggles of CF

The physical effects of cystic fibrosis can be debilitating. But for some, the emotional trauma can feel even more painful. Lindsey Tipsword, an adult living with CF, opens up about her struggles with the unseen, mental trauma of life with cystic fibrosis.
Read Lindsey's blog »

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