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October 2, 2019

How Can Behavioral Genetics Research Be Done Responsibly?

Scientists have high hopes for using "polygenetic risk scores" to better understand social and behavioral characteristics such as intelligence and obesity. But much behavioral genetics research has an ugly history and contemporary research risks exacerbating health inequities. A new Hastings Center project is exploring how this research can be done responsibly in ways that minimize harms and maximize benefits. Erik Parens, a senior research scholar, is leading the project, which is supported by the Robert Wood Johnson Foundation, the Russell Sage Foundation, and the JPB Foundation. "Bringing researchers and scholars together to speak over time about ethically fraught and scientifically complex questions is at the heart of The Hastings Center''s mission," says Parens. Read more.

 

In the Media: Crossing the Germline

“In Marcy Kelly’s story, ‘Double Spiral,’ genetic technology, in the hands of companies and hackers, goes wrong,” begins Josephine Johnston, The Hastings Center’s director of research, in an essay in Slate about a short story in the magazine that depicts a world rooted in today’s debates over gene editing. “It starts out, worryingly, with a private company holding gigantic amounts of genetic and health data on 60 percent of the U.S. population, with the ability to infer it for the rest of the country. Then, biohackers weaponize gene-editing technologies, causing the death of a senator, while a new genetic mutation known as ‘K5’ accidentally enters the gene pool.” Though we may not be headed toward this dystopian future, Johnston warns that “we are adopting a worldview that sees humans, including future generations, as mutable in much the same ways that Kelly depicts.” In this worldview, moral and ethical considerations, such as purposefully altering human evolution, are subordinated to amassing data about people. As in the story, these priorities could have perilous consequences. Read the essay
 

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