WomenHeart: National Coalition for Women with Heart Disease

January 2021 eNews

#29DaysofHeart.jpeg Heart Month and #29DaysofHeart
February is Heart Month. Be sure to follow WomenHeart on social media. Our annual #29DaysofHeart campaign will run throughout the month in honor of Black History Month, highlighting the impact of heart disease on African-American women. In addition, we will host a Twitter chat on Diversity in Medical Research at 2:00pm ET on Wednesday, February 10 in partnership with Temple Health, as well as participate in online events for Heart Failure Awareness Week and Heart Valve Disease Awareness Day (including an online celebration on Monday, February 22 at 1:00pm ET). Follow us on Facebook, Twitter and Instagram to get more information about those events.

WomenHeart Welcomes New Board Members
On January 28, 2021, WomenHeart welcomed five new members to the Board of Directors. Joining Interim Chair Gayathri Badrinath on the board are new members Courtney Jordan Baechler, MD, MS of the Minneapolis Heart Institute Foundation, Rashida Bobb, MPH, the Principal at BricksHealth, Robin Olson, a WomenHeart Champion, Elinor Shin, PhD, JD, of MyoKardia, Inc. and Susan Spencer, a women’s advocate and former editor-in -chief of Woman’s Day.

Convening on Missed and Delayed Diagnosis of Heart Disease in Women
WomenHeart, in partnership with the Society to Improve Diagnosis in Medicine (SIDM), hosted a Convening on Missed and Delayed Diagnosis of Heart Disease in Women on January 27, 2021. Funded by an award through the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI), the convening brought together clinicians, researchers, advocates, government officials and patients – including nine WomenHeart Champions – to discuss interventions and potential research questions to address the challenge. There will be a report generated and available this spring.

Facebook Live on Cholesterol Management
WomenHeart hosted a Facebook Live in December focused on cholesterol management. Cardiologist and Wenger Award winner Dr. Martha Gulati shared what women need to know about cholesterol and heart health, and two WomenHeart Champions shared their heart stories and advice for staying healthy. The event was supported by Esperion Therapeutics. You can watch it here.

Voices of Heart Failure
Throughout November and December, WomenHeart released videos of three WomenHeart Champions who shared their experiences of living with heart failure. Susan shared what it was like after receiving the diagnosis and how she learned to prioritize herself so she could thrive. Based on her experience with a delayed diagnosis, Starr shared her advice on how women can advocate for themselves and why she wants to be a voice for women who may be facing a similar journey. Porothea shared how she found sisterhood through WomenHeart after her diagnosis, which has helped her to live a full life. The videos are part of the How We Fight campaign, which is nationally sponsored and supported by Novartis, and are available here.

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