CURE Epilepsy Update: November 2020
Greetings CURE Epilepsy community,
Beth Lewin Dean
November is Epilepsy Awareness Month, an opportunity for the community to come together and raise awareness of how common epilepsy is, unite in fighting the stigma associated with epilepsy, and reinforce the importance of funding research to find a cure. The facts remain, 1 in 26 Americans will be impacted by epilepsy in their lifetime and 65 million people are living with epilepsy globally. Epilepsy is the fourth most common neurological disease in the US but is much less understood and receives significantly less funding ([link removed]) than other neurological diseases such as Parkinson’s, autism, and Alzheimer’s.
As COVID-19 continues to limit our ability for in-person activities it becomes even more important to use this month to talk about epilepsy with your friends and loved ones. Throughout November, we’ll be posting videos and articles on Facebook ([link removed]) , Twitter ([link removed]) , and Instagram ([link removed]) for you to share to spread awareness about living with epilepsy. A great place to start is with this video ([link removed]) where people with epilepsy, families, and community members share their hopes for a future free from epilepsy.
In this CURE Epilepsy update, please also find information on:
* Upcoming Webinar: Disparities in Epilepsy: Overcoming Barriers to Improve Care and Treatment Outcomes ([link removed])
* CURE Epilepsy Discovery: Epilepsy Surgery May Be Beneficial in Reducing SUDEP ([link removed])
* What’s New from the Seizing Life® podcast ([link removed])
* Save the Date: Kendra Scott Teams Up to Raise Money for CURE Epilepsy ([link removed])
** Webinar: Disparities in Epilepsy: Overcoming Barriers to Improve Care and Treatment Outcomes
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Disparities in epilepsy healthcare have been identified based on factors such as socioeconomic position, race and ethnicity, and address. On Monday November 16 at 12:00 pm CT, join us for a webinar ([link removed]) that will define the social determinants of health and health disparities and how these translate to the epilepsy community, as well as identifying strategies that can address these disparities in epilepsy care.
The Leaders in Epilepsy Research Webinar Series is made possible by the generous support of the BAND Foundation.
** CURE Epilepsy Discovery: Epilepsy Surgery May Be Beneficial in Reducing SUDEP
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For people who have epilepsy surgery, there may be a reduction in death and statistically significant fewer deaths from Sudden Unexpected Death in Epilepsy (SUDEP), suggests research from CURE Epilepsy grantee Dr. Lisa Bateman and her collaborator Dr. Catherine Schevon. Based on their analysis of data comparing mortality of those who underwent epilepsy surgery versus those who did not, Drs. Bateman and Schevon found that those who underwent surgery had a reduction not only in the occurrence of death, but significantly fewer deaths from SUDEP.
These findings provide evidence of additional potential benefits from epilepsy surgery in reducing the overall mortality rate, including SUDEP. A larger scale study will be instrumental in understanding how long these benefits last and whether there are any other factors that might predict who is at great risk for SUDEP post-surgery.
** New from Seizing Life^®, a CURE Epilepsy Podcast
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Catch up on the latest episodes of our Seizing Life podcast where we share:
* Advice from our host Kelly Cervantes and her husband Miguel on how to cope with the impacts and challenges of parenting a special needs child. Listen or Watch ([link removed])
* What two moms, Libby Boyce and Jessica Brandes, who each lost a son to SUDEP, wished they had known, and how that is driving them to transform their grief into awareness and action. Listen or Watch ([link removed])
** Save The Date: Kendra Scott Teams Up to Raise Money for CURE Epilepsy
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Learn More ([link removed])
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Looking for a holiday present that both delights and gives back? Then you won’t want to miss the Kendra Scott + CURE Epilepsy “Give Back” event. Purchase any Kendra Scott item online on November 5-6 using the code GIVEBACK00CA and CURE Epilepsy will receive 20% of the proceeds. This is an exciting opportunity to buy gifts for yourself or loved ones and help fund the incredibly important epilepsy research CURE Epilepsy does.
Visit our website ([link removed]) to learn more about other exciting events we have planned.
Upcoming CURE Epilepsy Events:
* November 5-6: Kendra Scott + CURE Epilepsy Give Back event ([link removed]) – Old Orchard Mall, Skokie, IL and Online
* November 7-8: Dressage for a Cause ([link removed]) – Batavia, OH
* December 1: #GivingTuesday ([link removed]) – Online
Our mission is to find a cure for epilepsy, by promoting and funding patient-focused research. CURE Epilepsy is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.
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