:: Applications Deadline is This Monday, October 5th ::
We are delighted to announce that applications are now invited for the 2020 Educational Grants.
The Society offers educational grants each year to people with haemophilia or related bleeding disorders, and/or their immediate family members who go on to do a post second level educational course.
The purpose of the grant is to offer financial support to students to assist them with the extra expenses involved with their studies.
** Please note, even if you are eligible to apply for more than one grant, you can only apply for one of them.
You can apply online or you can download the application forms below, and post the completed forms into the office; there is more info on the various grants is available here.
If you plan to join, we would appreciate it if you could drop Barry an email at [email protected] to give us an idea of numbers.
FYI: We shall be recording the audio and slides from some Webinars to make them available to those that cannot attend. Please be assured that only audio from speaker's presentations and not Q&As will be recorded. Attendees will not be identifiable on the recordings.
Virtual October Conference - Limited Spaces Still Available -
We've have a limited number of spaces available for the Irish Haemophilia Society Virtual October Conference 2020. The conference will take place via Zoom on Saturday, October 17 & Sunday, October 18; between 10AM & 1PM both days
The event is free to attend but you must register beforehand.
To register your place for the I.H.S. Virtual October Conference 2020 please contact the office on 01 657 9900 or [email protected].
There is an Interactive Session on Sunday morning, the society will post a TheraBand / Consent Form. This form must be completed, signed and returned to us by October 15. Details for the event will be sent to those of you have already registered, next week.
Preliminary Programme
Saturday, October 17: 10.00 - 13.00
10.00 - 11.00 Gene Therapy Update & Discussion
Speakers: Prof. Mike Makris and Brian O’Mahony
11.00 - 11.45 Hemlibra
Speakers: Dr Niamh O Connell & Dr Beatrice Nolan
11.45 - 12.15 Break
12.15 - 13.00 Treatment Discussion Panel
Gene Therapy Brian O’Mahony
Hemlibra - David Flanagan
EHL Factor - Colm Walsh
Plasma derived VWF - Luz Maria Heaney
Sunday, October 18: 10.00 - 13.00
10.00 - 11.00 Healthy Diet in a Pandemic
Speaker: Ms. Didi de Zwarte, Registered Dietician
11.00 - 11.30 Break
11.30 - 13.00 Exercise & Health (Interactive Session)
Speakers / Facilitators: Sheila Roche, Mark McGowan & Paula Loughnane
EHC 2020 Annual Virtual Conference
October 5 - 9
The European Haemophilia Consortium (EHC) is delighted to welcome you to its 2020 Annual Virtual Conference, taking place October 5 - 9.
This year’s event will be held virtually to ensure the safety of our community. However, a different format doesn’t mean less content, and furthermore, because of this virtual format, the EHC can welcome all for free!
While it is free to attend, you must register beforehand, and you can do so here.
Take a look below at our full conference programme and do not hesitate to get in touch with our Conference Organisers for further information.
KIDS Virtual Conference
We are delighted to announce a Virtual Conference for young I.H.S. members on Saturday, November 7, 2020.
With the October Conference taking place virtually this year we wanted to make sure that our young member's are not left out. Hopefully this is an opportunity for fun and learning and to connect with friends at the same time.
The provisional programmes are below and for more details, please contact Robert on (01) 657 9900 or [email protected]
As a parent, when a child is diagnosed with a bleeding disorder, you may feel scared, worried and even guilty. It may be an especially hard time for those with no family history of the condition.
It is important to remember that with good treatment the child with a bleeding disorder has every chance of growing up as an active, fit person who can participate in family, school and later working life. Because bleeding disorders are rare conditions parents may feel isolated and alone and it is very helpful to be put in touch with others in a similar position.
The Society offers support and advice to help improve the quality of life for people with bleeding disorders - and we hope that this publication is a useful, reassuring and helpful resource.
If you would like a physical copy, please contact the office on 01 657 99 00. You can read a digital copyhere.
WFH Virtual Summit 2020 Review Magazine
Due to the Covid-19 pandemic, the WFH International Congress this year, which was due to take place in Malaysia, was organized virtually in June as a Global Summit.
The event was very successful. We did lose the ability to interact face to face, to meet speakers, to discuss new information together. However, we gained the opportunity for people who would otherwise not have been able to attend due to time or finance constraints to attend. It was also great to see that registration was free of charge, enabling any member of the Society who wished to attend, to do so.
As you would expect, the programme was varied and multidisciplinary with a particular focus on Gene Therapy, Novel current and future therapies. It was good to see a growing emphasis on traditionally overlooked areas of von Willebrands, rare bleeding disorders and women and bleeding disorders receiving more attention.
Over the course of the week, there were 55 sessions with 8551 participants from 159 Countries from across the globe. This attendance included; 1817 haematologists, 1758 from industry, 889 people with bleeding disorder and 477 nurses
This publication is just a snapshot of the week but we hope you find it interesting and informative.
Another digital only magazine and we hope you enjoy reading it. You can read ithere.
Hyde Square Apartments
Just to remind you all, that the Hyde Square apartments will continue to be available for members and bookings will be taken as normal.
People with haemophilia or related bleeding disorders from outside of Dublin, when attending St. James’s Hospital or Our Lady’s Children’s Hospital, Crumlin for treatment, for a hospital appointment or for a review clinic.
An immediate family member, a spouse, a partner and/or child of the person with haemophilia or related bleeding disorder from outside Dublin, when attending St. James’s Hospital or Our Lady’s Children’s Hospital, Crumlin for treatment, for a hospital appointment or for a review clinic, or while a family member is an in-patient.
To make a booking, please contact Julia on 01 657 9900*.
