Today I had had a meeting with Velindre alongside Julie Morgan MS and wanted to update you on our discussion.
For some time I have been calling for an independent review of the clinical model to ensure patient safety and future-proofing was at the heart of a new Velindre development. I had called on the Welsh Government earlier this month to commission the review. Velindre recently announced that the health think tank, the Nuffield Trust has been appointed to “advise on the clinical model underpinning proposed improvements to Velindre’s cancer services”. I welcome the steps taken to obtain external input, however I have received a number of concerns from constituents in relation to the independence of this review which I raised with Velindre today.
I have reaffirmed the crucial need for this review to be independent, robust, transparent and clinically led no matter what the outcome. I also raised the need for accountability measures when the recommendations are published- for example that the findings are made public and it’s important Welsh Government are made aware of the review’s findings.
In our meeting, Velindre advised the following:
-The review is set to be led by the Chief Executive of the Nuffield Trust, Nigel Edwards, who will establish a panel of oncology experts/clinicians.
-The Nuffield Trust will set the terms of enquiry/remit and this will not be set by Velindre.
-Nuffield will robustly test Velindre’s proposals with independent thinking.
-Nuffield’s advice will address concerns raised about proposals to build the new centre in Cardiff North.
-Aim for the review to be finalised by the end of October.
-Velindre has committed to publishing the review’s recommendations in the interest of transparency.
-Reaffirmed that Velindre are taking the concerns very seriously and desire to give the best patient care.
I have asked to sight the Terms of Reference which I will receive in due course which will hopefully clarify that all the concerns that have been raised will be included in the remit of the review and examined in detail. I have also sought a meeting with Welsh Government.
Finally, I raised the issue of the divisive and abusive comments we are seeing on social media. There is no doubt that all of us want to see the best clinical cancer services for patients. Velindre agreed that there was no need for some of the abusive comments we have seen lately and wanted to be clear that they were not associated with any of the Facebook pages apart from their own official one.
As soon as I have any further updates I will share them. You can view my statement on why I've called for a review below.
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