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July 10, 2019
** Does Genetic Testing Pose Psychosocial Risks?
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Anxiety, depression, disrupted relationships, and heightened stigmatization have all been posited as possible effects from genetic testing—but not consistently found. What accounts for the discrepancy? A new special report published by The Hastings Center reveals some harms, but too many variables for “one-size-fits-all” answers. Editors are Erik Parens, a senior research scholar at The Hastings Center, and Paul Appelbaum, the Elizabeth K. Dollard Professor of Psychiatry, Medicine and Law, and director of the Center for Law, Ethics and Psychiatry at Columbia University, who is a Hastings Center Fellow. Read the special report for free ([link removed]) .
** Our New Research Agenda: Ethics of Population Aging
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The Hastings Center is embarking on a new research agenda on the ethics of population aging, with a focus on the precarity of older adults, questions of justice, and issues of personal choice. In a new essay in the Health Affairs Blog, Hastings Center research scholar Nancy Berlinger and president Mildred Z. Solomon offer a glimpse of two projects that will help chart the course of this work. “The field of bioethics has worked hard to promote patient choice, especially in the context of end-of-life care,” they write. “Yet ethical challenges near life’s end are not limited to bedside decision making.” The projects are made possible by a major grant to The Hastings Center from The Robert W. Wilson Charitable Trust as part of its visionary support for the Center’s research and public engagement on ethical challenges facing aging societies. Read the essay ([link removed]) .
** In the Media: Hastings' Karen Maschke on Combatting Sham Stem Cell Studies
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Officials are concerned that some for-profit stem cell clinics are listing questionable studies on ClinicalTrials.gov, a registry supported by the National Institutes of Health, to imply that NIH endorses the studies. Now, NIH says it is taking steps to improve its registry, including making more prominent disclaimers stating that a study's listing doesn’t mean government endorsement. In an interview in Bloomberg Law, Hastings Center research scholar Karen Maschke said more rigorous standards for posting studies to the registry should be considered. Maschke, who is coauthor of a recent book ([link removed]) on evidence and medical technologies, including stem cell treatments, said one solution might be to require posting a study's protocol, including the purpose, research methods, and other details. “Everybody who’s anybody in this world of science and clinical trials knows what a
good protocol looks like,” she said. Read the Bloomberg Law article ([link removed]) .
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