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In this series of video shorts, six women share their personal stories, with an emphasis on what they wish Intended Parents knew about egg donation.
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Katie Hasson, Biopolitical Times | 08.13.2020
Why is a private equity firm with ties to Donald Trump paying $4.7 billion for Ancestry, the direct-to-consumer genetic testing company that has more than 18 million people’s DNA in its database?
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Emily Galpern, Biopolitical Times | 08.11.2020
Surrogacy360 and We Are Egg Donors partnered on a series of videos to amplify egg providers' perspectives and offer advice on how intended parents can advocate for the health, rights, and humanity of egg providers.
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Pete Shanks, Biopolitical Times | 08.10.2020
This multifaceted book has at its center the author’s experiences tracking the life story of David Starr Jordan, the first president of Stanford University and one of the most significant American proponents of eugenics. Stanford is at present considering renaming Jordan Hall and removing his statue.
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Marcy Darnovsky, Issues in Science and Technology | 07.31.2020
Darnovsky responds to an interview with Jennifer Doudna about heritable genome editing, noting that Doudna both failed to discuss how the ethical issues she mentioned can be addressed and has rejected widespread calls for an enforceable moratorium.
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Michael Cook, BioEdge | 8.2.2020
Cites Gina Maranto’s Biopolitical Times post, which “reminds readers [that Edwards] was a dyed-in-the-wool eugenicist” and quotes her discussion of Osagie Obasogie’s 2013 Scientific American article about Edwards’ anticipation of using IVF for determining “the quality of our children.”
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HERITABLE HUMAN GENETIC MODIFICATION | GENE THERAPY | EUGENICS | COVID | ASSISTED REPRODUCTION | GENOMIC TESTING | PLANT TECHNOLOGIES | STEM CELLS
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HERITABLE HUMAN GENETIC MODIFICATION
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Stuart A. Newman and Tina Stevens, Medium | 08.03.2020
Modifying genes shows promise in curing medical conditions in sick people, but current research suggests that making irreversible genetic changes in people who don’t yet exist would be a big mistake.
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Sarah Katz, Discover | 08.11.2020
Researchers have figured out how to use a gene-editing tool called CRISPR 2.0 to prevent and treat deafness. But many deaf people are happy the way they are.
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Catherine Shaffer, GEN | 08.03.2020
Base editors, exonucleases, and other refinements enable advances in pathogen recognition, antibacterial development, genetic medicine, xenotransplantation, and agriculture.
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Antonio Regalado, MIT Technology Review | 07.29.2020
Celebrity geneticist George Church and at least 20 other researchers and “science enthusiasts” didn’t want to wait for the results of clinical trials. “I think we are at much bigger risk from covid,” Church said.
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Rob Stein, NPR | 07.20.2020
BioMarin Pharmaceutical says the treatment could cost as much as $3 million per patient, which they justify by claiming that it would save a lot of money in the long run.
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Brian Lovett, Undark | 08.06.2020
The traditions we carry into the future, including whom we choose to honor, should be able to withstand modern scrutiny.
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Julia Jacobs, New York Times | 07.29.2020
The Wildlife Conservation Society apologized for an incident in1906 when a Central African man was placed on exhibit at the zoo, and for its association with two eugenicists.
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Becca Muir, Prospect | 07.28.2020
The home of eugenics has nearly always been in universities, says David King of Human Genetics Alert: “Universities are a protected space for these kind of views.” However, others disagree, suggesting that “today we know far more but are much less confident about how we use that information.”
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Isabel Wilkerson, The Guardian | 07.28.2020
We cannot fully understand the current upheavals, or almost any turning point in American history, without accounting for the human pyramid that is encrypted into us all: the caste system. Caste and race are neither synonymous nor mutually exclusive. Caste is the bones, race the skin.
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Ed Yong, The Atlantic | 08.04.2020
In dealing with the coronavirus epidemic, America has careened between inaction and ineptitude. The breadth and magnitude of its errors are difficult, in the moment, to truly fathom.
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By Dina Temple-Raston & Tim Mak, NPR | 07.29.2020
There are questions about how TeleTracking Technologies came to be responsible for gathering data in the midst of a pandemic.
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Rod McCullom, Undark | 07.27.2020
How racially biased is AI medicine? Are biased algorithms worsening Covid-19’s toll on Black Americans?
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Andrew Roth, The Guardian | 07.29.2020
Border closures related to the pandemic have put additional strain on surrogate mothers, some of whom have been asked to provide care until intended parents can travel to Russia.
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David Kaufman, New York Times | 07.22.2020
A movement has formed around providing increased access to family formation through gestational surrogacy. Proponents argue that one’s ability to build a family should not be determined by wealth, sexuality, gender or biology.
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Kevin Truong, Vice | 08.07.2020
According to the company, “Blackstone will not have access to user data and … will not be sharing user DNA and family tree records with our portfolio companies.” Observers wonder, however, why they are investing in the company, which was recently forced to make layoffs amid slowing growth.
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Caitlin Harrington, Wired | 07.30.2020
Technology has a way of creating new consequences for old decisions. Today, consumer DNA tests allow donor-conceived people to match with half-siblings, track down their donors, and form advocacy organizations. More and more of them are banding together to demand regulation of a fertility industry they say has long overlooked their concerns.
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The Stop Golden Rice Network, Independent Science News | 08.07.2020
On the 7th annual International Day of Protest Against Golden Rice, a coalition including organizations from many Asian countries details the scientific and political reasons behind their objections to Golden Rice as an unwanted and unnecessary technology.
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Editorial, The Bakersfield Californian | 08.08.2020
“Voters and earlier proposition advocates should be proud of the progress the initial $3 billion stem cell investment has accomplished. But times have changed and passage of another mega-bond now would be unwise.”
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