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Dear
Friend,
It started with a moment we’ll never forget.
Sitting in a hospital room after the birth of our son, Silas, we were told he had Sturge Weber syndrome, a rare condition that causes epilepsy. This moment changed everything.
That same day, we learned researchers had just discovered the gene behind his condition. In the middle of fear, scientific research provided something unexpected: hope, as well as a reason to act.
We weren’t going to just wait. We were going to do something. And today, through UNITE, you can too. ([link removed])
We started small. We shared our story with friends and family and asked a few people to give to CURE Epilepsy in honor of Silas to support epilepsy research.
That first endeavor resulted in $9,000! More importantly, it showed us that when you invite people in, they want to help. That’s where the ripple effect began.
So, we kept going.
A karaoke night became a yearly tradition.
A single triathlon race became a team.
And with every step, more people joined us, united by a belief in the power of research to change lives.
Last year, 38 people came together for the Chicago triathlon and raised $100,000 for research, all because one story invited them in.
Today, you can help that ripple effect grow even faster – every gift you make will help unlock a $25,000 generous match from Jonathan and Julia Tuteur, doubling your impact. ([link removed])
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This UNITE, we’re inviting everyone who hasn’t yet made a gift to take that first step and become a donor. Our goal is to welcome at least 75 new supporters, but every gift helps build momentum towards a cure. Will you make your gift and be part of the movement that moves research closer to a cure? ([link removed])
With gratitude,
Kris Sadens
P.S: Every gift makes a difference and creates a ripple effect ([link removed]) — No matter the size.
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Our mission is to fund breakthrough research that will transform the lives of people with epilepsy as we lead the search for a cure. CURE Epilepsy is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.
Copyright (C) 2026 CURE Epilepsy. All rights reserved.
In the past you provided CURE Epilepsy your email address. Occasionally, you will receive updates from us about epilepsy research and news.
Our mailing address is:
CURE Epilepsy
420 Wabash Ave, Ste 650
Chicago, IL 60611
USA
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