Stay connected with the latest stories from the CF community


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January 2026



CF Foundation Community Blog Digest


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The Cost of Care in a Broken System

By Michelle Patrovani, a parent of two adults with CF

"For decades, I've fought for my sons who were diagnosed late with cystic fibrosis and still face barriers to life-saving treatments. I continue to fight every day -- taking no days off -- because no family should be denied the opportunity for a better future."

Read Michelle ([link removed])




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EMOTIONAL WELLNESS

Overcoming Medication Anxiety

By Christina Marioneaux, an adult with CF

"I've always approached new medications with caution, concerned about potential side effects. That hesitation is why it took me several weeks to finally try Pulmozyme for the first time."

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MANAGING FINANCES

What I Wish I Knew Before Moving With Cystic Fibrosis

By Michelle Bowers, a parent of a child with CF

"While relocating to a new state, my family faced some unexpected hurdles. But with the incredible support of our community, we survived the journey."

Read Michelle ([link removed])




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GET INVOLVED

Finding Community Through an Unexpected Hobby

By Keshav Harpavat, a CF Foundation volunteer

"I never expected a simple musical hobby to introduce me to a global community of resilient and optimistic individuals. Each week, I now have the pleasure of interacting with those with CF around the world, hearing their extraordinary stories and seeing the determination they bring to every part of their daily lives."

Read Keshav ([link removed])





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