Stay connected with the latest stories from the CF community


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November 2025



CF Foundation Community Blog Digest


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My Experience With Disordered Eating on Trikafta

By McKenna Geiser, an adult with CF

"The weight gain I experienced after starting Trikafta caught me off guard and led to disordered eating patterns I'm now learning to heal from."

Read McKenna ([link removed])




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FAMILY PLANNING

Navigating Family Planning After a Double-Lung Transplant

By Averie Wood, an adult with CF

"After undergoing an emergency double-lung transplant, I was heartbroken to learn that getting pregnant would no longer be a viable option for me. That moment marked the beginning of our ongoing journey to build a family."

Read Averie ([link removed])




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CARE TEAM

How a Supportive Care Team Changed Our CF Story

By Greta Mesar, a parent of a child with CF

"When my daughter was first diagnosed with cystic fibrosis, the misinformation I found online only deepened my fears. But thanks to the guidance and compassion of our care team, I've realized life with CF can be filled with love, strength, and hope."

Read Greta ([link removed])




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DIAGNOSIS

Learning to Move Forward After My Late Diagnosis

By Karen Connell, an adult with CF

"When I was diagnosed with cystic fibrosis at 43, I thought I was living on borrowed time. Now, at 75, I've learned that I am not defined by the odds."

Read Karen ([link removed])




Want to catch up on the community stories shared at the North American Cystic Fibrosis Conference?

Explore our blog posts from this year's plenaries:

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Modulators Aren ([link removed])
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Navigating Aging and Milestones With CF ([link removed])
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I Still Struggle With Health Disparities That Affect My CF Care ([link removed])






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