October 2, 2025

CF Foundation Invests Additional $3 Million to Test mRNA Therapy 

We have invested an additional $3 million in ReCode Therapeutics to provide further support for an ongoing Phase 2 clinical trial of its inhaled messenger RNA therapy. The therapy has the potential to help all people with cystic fibrosis, including those with rare and nonsense mutations who do not benefit from modulators.  

Read more about our investment »

Act Now: Protect Health Coverage and CF Research

The government shutdown means key decisions are on hold — but people with cystic fibrosis can’t wait. If Congress doesn’t extend expiring tax credits that help families afford health insurance, costs could more than double next year. At the same time, critical funding for the NIH and FDA hangs in the balance. Urge Congress to act now: protect affordable coverage and support life-saving research. 

Act now »

Stay Protected from Respiratory Illnesses

The Foundation encourages everyone with CF to get their flu and COVID-19 vaccines, as well as the RSV vaccine for those eligible. It's also important for people who live with or are in close contact with someone with CF to stay up to date on these vaccinations. While vaccines cannot prevent all cases of flu, COVID-19, or RSV, these viruses can cause severe illness in people with CF, and vaccines can prevent or reduce the severity of these infections. 

Learn more »

Help Pave the Way for New CF Treatments 

Nearly every major CF treatment is available thanks to clinical trial volunteers. If you've never participated in a trial before, it's natural to have questions about what participation entails. Our Clinical Trial Navigator, Katie, can answer your questions and help match you to a clinical trial.  

Contact the Clinical Trial Navigator »

ROSE UP Celebration Now on YouTube

Last month, hundreds of members of the cystic fibrosis community came together for our sixth annual ROSE UP, a nationwide fundraising event to raise funds and awareness for CF. Watch the recording from this year’s event to hear from ROSE UP committee members and participants about how they marked this special celebration. Plus, your support can still make an impact — participate in ROSE UP by making a gift today.   

Watch the recording »