An Inside Look at All of Us

To our familia, friends, and colleagues:

LULAC is honored to partner with the All of Us Research Program because of its focus on helping future generations of underrepresented communities gain access to precision medicine and tailored health care. This program is offered by the National Institutes of Health, a government entity, which is why we would like to address many of the concerns that our community has in regards to participation in All of Us.

LULAC knows that members of our community who are considering participating may also have very valid concerns about sharing their personal health data. But the program’s approach to privacy and security has been developed by experts with input from a wide range of community partners. The program understands the importance of protecting its participants’ personal information and health data and is taking great measures to do so. The data is encrypted so names and other direct identifiers are removed and replaced with a code. All of Us limits and keeps track of who sees the information and has Certificates of Confidentiality from the U.S. government to help the program fight legal demands, such as court orders, to give out information that could identify participants.

Only approved researchers will be allowed to see data from individual participants. They will be required to register and verify their identity. Each researcher’s name, affiliation, and research purpose will be listed publicly. These researchers must agree to a code of ethics before accessing the data.

LULAC is one of the 30 plus well-known, trusted and respected national community and provider organizations partnering with the program to raise awareness about the importance of participation from our community. It’ll take all of us to change the future of medicine and eliminate the health inequality that exists today in our country. The All of Us Research Program is an opportunity to ensure that the Hispanic community is included in health research studies that can lead to new understandings and new treatments. Currently, more than 180,000 volunteers have joined as full participants, will you be next?

To learn more visit www.JoinAllofUs.org/together. Para español, visite www.JoinAllofUs.org/TodosJuntos