Stay connected with the latest stories from the CF community


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September 2025



CF Foundation Community Blog Digest


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How Cystic Fibrosis Shaped My School Years

By Daelyn James, an adult with CF

"Growing up with CF made school challenging -- not only because of hospitalizations and absences, but also because my teachers and classmates often didn't understand what cystic fibrosis was."

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FAMILY PLANNING

What CF Taught Me About Planning for a Baby

By Mariah Caise, an adult with CF

"When I decided it was time to start a family, I quickly realized that -- just like living with CF -- having a baby would mean preparing for the unexpected, especially when it came to finances."

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MENTAL HEALTH

The Mental Toll of a Childhood Transplant

By Alyce Bertrand, an adult with CF

"When I received a lung transplant as a child, I didn't realize the trauma from that experience would follow me well into adulthood."

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COLLEGE & WORK

How I Learned to Put My Health First

By Rachel Tauber, an adult with CF

"I tried to put school and work first, convincing myself my CF could wait. That is, until an infection stopped me in my tracks, leaving behind physical, emotional, and financial consequences."

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