From Cystic Fibrosis Foundation <[email protected]>
Subject Together: a Community Update
Date August 21, 2025 8:05 PM
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Announcing our 2025 Impact Grant recipients!


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# August 21, 2025



Congratulations to Our 2025 Impact Grant Recipients

Join us in congratulating the
recipients of our 2025 Impact Grants ([link removed]): BreatheStrong CF Exercise Grants, The Familiar Pinch -- Cystic Fibrosis Chronicles, Prioritizing You: A Wellness Program for Those Who Love Someone With CF, and Pipes for the People. This diverse group of recipients is dedicated to nurturing the mind, body, and soul of the cystic fibrosis community.


Learn more about the programs » ([link removed])


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Join our Advocacy Webinar: Protecting CF Research and Drug Development

Congress is making decisions that could directly impact cystic fibrosis research at the National Institutes of Health and the Food and Drug Administration.
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Hear from our policy and advocacy team, along with Katherine Tuggle, senior director of research, about what's at stake, what this means for the CF community, and how you can take action.


Save your seat » ([link removed])


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From the Community Blog: Standing With Those Who Don't Benefit From Modulators

Lily Harrington and her sister have nonsense mutations, meaning they don't qualify for CFTR modulators like Trikafta or Alyftrek. While she's happy for others in the CF community, it has been hard to feel hopeful. On the CF Community Blog,
Lily shares the complex emotions that come with not qualifying for CFTR modulators ([link removed])
and why she's not giving up.


Read Lily ([link removed])


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