Irish Haemophilia Society E-zine: June 26, 2020

Irish Haemophilia Society eZine: June 26, 2020
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Upcoming Webinars

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on;
Monday, June 29 @ 11am: Dental Care and Nose Bleeds in Children with Dr Kirsten Fitzgerald and Dr. John Russell

Wednesday, July 1 @ 2pm: Update from the NCC with Dr Niamh O' Connell, National Director & Consultant Haematologist, NCC

To join us for any of these meeting, please use the link & meeting ID below:

Join Zoom Meeting
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Meeting ID: 905 221 0070

If you plan to join, we would appreciate it if you could drop Barry an email at [email protected] (mailto:[email protected]) to give us an idea of numbers.

FYI: We shall be recording the audio and slides from some Webinars to make them available to those that cannot attend. Please be assured that only audio from speaker's presentations and not Q&As will be recorded. Attendees will not be identifiable on the recordings.

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Educational Grants 2020

We are delighted to announce that the application process for the 2020 Educational Grants will open on Monday 29 June 2020.

From Monday, you can apply online at haemophilia.ie or download the application forms from our website and post the completed forms into the office.

The closing date is Monday 28 September 2020.

The Society offers educational grants each year to people with haemophilia or related bleeding disorders, and/or their immediate family members who go on to do a post second level educational course.

The purpose of the grant is to offer financial support to students to assist them with the extra expenses involved with their studies.

For more information on the grants, please click here ([link removed]) .

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Blood Health 2020

We are delighted to have worked with Health News on their Blood Health campaign once again this year.

A printed publication was enclosed within every copy of the Irish Independent and the content is available online here ([link removed]) .

The campaign featured exclusive content from key thought leaders and industry voices about the impact of Covid-19 on haematology patients, malignancies, thrombosis and more

You can read Brian O’Mahony's piece on how the long-cherished hope of seeing gene therapy for haemophilia is now visible on the horizon, here ([link removed] ) .

#Bloodhealth

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Exercise & Physical Activity for Children
with Paula Loughnane, Senior Physiotherapist, CHI Crumlin

As part of an ongoing series of webinars hosted by the Irish Haemophiia Society, Paula Loughnane, Senior Physiotherapist at CHI Crumlin discusses 'Exercise and Physical Activity for Children'.

Paula looks at:
* Benefits of Physical Activity
* What is Physical Activity?
* Physical Literacy
* Types of Physical Activity (Intensity, strengthening)
* Recommendations
* Physical Activity in Children in Ireland
* Encouraging Physical Activity

This was recorded on Wednesday, June 3 2020 and we are working on bring other recorded webinar session as soon as possible.

For more info, see haemophilia.ie

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EHC Leadership Conference 2020

Despite the challenges presented by Covid-19, it is important we come together as a community to exchange and engage on shared issues and challenges.

With that in mind, the EHC is organising its Leadership Conference 2020 online this year.

The objective of the EHC Leadership Conference remains the same – to provide time to discuss the issues that matter to you and to benefit from each other’s strengths, experiences and best practices, as well as to still do it so with the usual interactive and engaging elements to the extent possible.

Registration is free and it takes place online over three days - 25, 26, 27 June 2020.

The programme is below and if you are interested in attending, please email [email protected] (mailto:[email protected])

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Hyde Square Apartments

Just to remind you all, that the Hyde Square apartments will continue to be available for members and bookings will be taken as normal.
* People with haemophilia or related bleeding disorders from outside of Dublin, when attending St. James’s Hospital or Our Lady’s Children’s Hospital, Crumlin for treatment, for a hospital appointment or for a review clinic.
* An immediate family member, a spouse, a partner and/or child of the person with haemophilia or related bleeding disorder from outside Dublin, when attending St. James’s Hospital or Our Lady’s Children’s Hospital, Crumlin for treatment, for a hospital appointment or for a review clinic, or while a family member is an in-patient.

To make a booking, please contact Julia on 01 657 9900*.

For more info, please click here ([link removed]) .

* A nominal fee of €10.00 per booking, per night will be levied to offset the cost of cleaning and routine maintenance.

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Summer Magazine Gallery

We've all been been finding ways to keep occupied at home recently, a task which was made much more palatable by the fab weather last week!

We'd love to include a photo gallery of what members have been up to for our Summer Mag.

It could be anything from DIY or gardening, BBQs or just chilling, home schooling or online quizzes - whatever you've been up to, we'd love to include some of your photos in our next magazine so, please, send them on to barry@haemophilia

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Events Update

Hardly a surprise given the current situation we find ourselves in but so far we've had to make some changes to our events:

June

Mother & Daughter(s) Overnight

Date: Saturday June 20th & Sunday, June 21st
Venue: Lilliput Adventure Centre

This event has unfortunately been cancelled.

July

Father & Son(s) Overnight

Dates: Saturday July 4th & Sunday, July 5th
Venue: Lilliput Adventure Centre

FYI: This event has unfortunately been cancelled.

Mild Haemophilia & Haemophilia B Information Day

Date: Saturday 18th July

This event will now take place online, via Zoom.

August

Family Day Out

Date: Monday, August 10th
Venue: Dublin Zoo

FYI: This event has unfortunately been cancelled.

Von Willebrand’s Information Day

Date: Saturday, August 29th
Venue: Castleknock Hotel, Dublin

It is currently planned to proceed with this event

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LINKS OF INTEREST
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Irish Haemophilia Society
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