Learn how new legislation may affect your CF health coverage


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# July 24, 2025



CF Foundation Commits Up to $24 Million in Additional Funds for Prime Medicine to Develop Gene Editing Therapy

The Cystic Fibrosis Foundation has
committed up to $24 million in additional funds for Prime Medicine to continue developing a gene editing therapy for cystic fibrosis ([link removed]). The funding will go toward the development of a gene editing therapy targeting the nonsense mutation G542X -- the second most common CFTR mutation in the U.S. and one for which there are no available therapies.


Read more about our commitment » ([link removed])


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Navigating Mental Health and CFTR Modulators

CFTR modulators have brought significant benefits to many people with CF. At the same time, questions have emerged about possible negative mental health impacts, highlighting the complex ways in which minds and bodies are interconnected. Use our guide, "
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Explore our mental health guide » ([link removed])


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Are You Ready for Back-to-School Season?

As back-to-school season approaches, you can help ensure your child's social, emotional, medical, and educational needs are met
by requesting an individualized education program (IEP) or 504 plan ([link removed]). These plans can manage absences and treatments. Additionally, consider informing your child's school about their cystic fibrosis to help staff support your child and reduce the risk of getting and spreading germs at school.

Plan ahead for school » ([link removed])


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From the CF Community Blog: What I've Learned as a Mom With Cystic Fibrosis

While living with cystic fibrosis taught Tosha Wise to take responsibility for her own care, she felt unprepared for managing the mental load of being an adult with a chronic illness. On the blog,
Tosha shares how she has found a balance ([link removed])
between motherhood, her career, and personal priorities while navigating life with CF.


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