Explore new data from the Patient Registry Highlights Report


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# June 26, 2025



Explore Highlights in Health Trends From the 2024 Patient Registry

Our
2024 Patient Registry Highlights report is now available ([link removed]). It includes important data on people with cystic fibrosis in the U.S. who participate in the Registry, covering topics such as lung function, common CF infections, exacerbations, mental health, lung transplants, and more.

Explore the highlights » ([link removed])


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College Students: Make a Difference This Summer!

Join a nationwide community of students ages 18 and older who are committed to improving the lives of everyone with CF during the
CF Foundation’s College Program presented by Tomorrow’s Leaders ([link removed])
-- a weeklong virtual program, July 21-26.

Register now » ([link removed])


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Update Your Emergency and Natural Disaster Plan

An emergency or natural disaster can occur at any time. That's why it's important to revisit your preparedness plan annually to ensure all supplies and information are up to date.
Our emergency and natural disaster preparedness guide ([link removed])
can help take the guesswork out of creating or updating a plan for you or your loved one with CF.


Create or update your plan » ([link removed])


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From the CF Community Blog: My Journey Through Late Diagnosis

Mindy grew up watching her sister live -- and thrive -- with cystic fibrosis for 53 remarkable years. Nearly a decade after her sister's passing,
Mindy was diagnosed with CF herself ([link removed]), sparking a journey of acceptance, healing, and self-discovery.

Read Mindy ([link removed])


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