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June 18, 2020

Envisioning a "Braver Bioethics" Against Racial Injustice

The Hastings Center hosted a virtual discussion, “New Ethical Questions and 21st Century Genomics,” on June 4 with Alondra Nelson, president of the Social Science Research Council and a professor at the Institute for Advanced Study in Princeton who is a Hastings Center fellow. Nelson discussed racial injustice in the context of her recent work to examine African-Americans’ interest in direct-to-consumer genetic ancestry tests. She cited ethical questions about informed consent, who has access to people’s data, and how the data is used—and noted that the ethical stakes have increased now that genetic ancestry databases are being used to solve crimes. With the United States and countries around the world protesting racial injustice, Nelson said that justice is one of the core pillars of bioethics. She envisioned a “braver bioethics” that considers ethical principles like beneficence and justice in contemporary social, technical, and political contexts. “That may mean more protections for some, greater access to funding for others,” she said.  Watch the video of the event.
 

Deadline Approaching: Early-Career Scholar Essay Award

The Hastings Center invites submissions to the David Roscoe Award for an Early-Career Scholar’s Essay on Science, Ethics, and Society. The award is a demonstration of The Hastings Center’s commitment to public engagement, including excellent writing for the public on the social and ethical implications of advances in science and technology. Hastings is especially interested in supporting public-facing writing by early-career scholars out of recognition that this kind of writing is not always encouraged within academia. This award, named in honor of a recent past chair of the Hastings board, includes prize of $2,000. Deadline: July 1. Learn more and submit an essay here.

 

In the Media: Calculus of Reopening, "Mask Police," Privacy and Covid Testing

Hastings Center president Mildred Solomon urged political leaders to stop thinking of reopening the economy as a tradeoff between saving lives or jobs. “We humans like to think in either or, black and white,” she said in an interview with Newsday. “We say, 'we think that we have to trade off between economic well being and health,' when in fact they are very intertwined … the goal should be to solve a problem that takes into account all the different things we have to consider and recognizes interrelationships between economic and health well being.” Read the Newsday article.

Scolding people for not wearing masks in public or failing to remain six feet apart – public shaming has become common during the pandemic. In an interview with CNN, Hastings Center research scholar Nancy Berlinger said that messaging on when and how to wear masks needs to be clearer. “In these everyday interactions with masks, should everyone be turning themselves into the mask police?” she said. “Or should we absolutely make sure that everyone understands why this is important, how to do it, where to get masks and figure out friendly ways of encouraging each other?” She added that shaming people who aren’t following the rules could align with people’s biases about who does things wrong in society. Read the CNN article.

Hastings Center research scholar Michael Gusmano discussed concerns about the personal data that is collected by Covid testing sites and who has access to it. “Pop up community-based testing sites are playing an important role but there are a lot of parties touching people’s information,” he said in an interview with the South Florida Sun Sentinel. He said that standardizing how information is collected, reported, and analyzed is needed to raise public comfort levels. “The last thing we want to do is discourage people form getting tested, which is going to be one of the main  tools for controlling this virus.” Read the Sun Sentinel article.

 

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