See what the CF community prioritizes in cure, care, and community


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# June 12, 2025



Updated Median Predicted Survival Age for People With CF in the U.S.

According to
2024 Patient Registry data ([link removed]), the median predicted age of survival for people with cystic fibrosis born in the U.S. between 2020-2024 is estimated to be 65 years of age. We celebrate this continued improvement while recognizing that many with CF still have shorter lifespans. Understand how this number is calculated and explore frequently asked questions about this topic.

Understanding survival age predictions » ([link removed])


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Join the 65 Roses Club

On 65 Roses® Day, the 65 Roses Club grew -- moving us one step closer to achieving our mission. However, our work isn't finished until every person with CF has the opportunity to live a long, fulfilling life. That's why we need you to
join our 65 Roses Club ([link removed])
-- a loyal group of individuals who give monthly. Help advance our mission and join today.

Become a member today » ([link removed])


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Community Survey Insights to Inform Foundation Priorities

Results
from our survey last fall of nearly 2,000 people across the CF community ([link removed])
show that CF remains a burdensome disease even for people taking modulators. An overwhelming majority of respondents also said the Foundation should prioritize a balance of research and drug development for both a cure and for complications people face today. These insights will help inform the Foundation's next strategic plan, which will be released in 2026.


See more survey results » ([link removed])


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10 Years of Impact on CF Research, Care, and Programs

For 10 years, Community Voice has driven community-informed CF research, care, and programs, totaling more than
600 projects directly shaped by people with CF and their families ([link removed]). Sharing your unique experiences can help make a difference for the CF community, too. Anyone age 13 and older who has CF or is a family member of a person with CF is invited to make their voice heard.

Join Community Voice » ([link removed])


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ResearchCon Recordings Now Available on YouTube

Whether you couldn't join us live or want to revisit discussions that matter most to you, recordings from this year's ResearchCon are now available on YouTube in
English ([link removed])
and
Spanish ([link removed]). Watch now to hear leading CF clinicians and researchers discuss gastrointestinal complications, the latest approaches to CF nutrition, and the current state of gene therapy research.

Watch the recordings » ([link removed])


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