From Cystic Fibrosis Foundation <[email protected]>
Subject CF Community Blog updates — Straight to your inbox!
Date June 1, 2025 10:15 AM
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Stay connected with the latest stories from the CF community


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June 2025



CF Foundation Community Blog Digest


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Why I Stride

By Katherine Salimi, mother of a child with CF

"Growing up, I participated in Great Strides in honor of my cousin who has CF. Today, I stride with even more purpose -- now for my son, who was diagnosed with CF."

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What My Mother Taught Me About Life With CF

By Isaiah Jones, an adult with CF

"Watching my mother struggle with CF until she ultimately passed away was heartbreaking. However, she instilled in me a deep sense of strength, resilience, and a commitment to live life fully despite the challenges."

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My Journey Through Two Double-Lung Transplants

By Katelyn Garcia, an adult with CF

"Undergoing two double-lung transplants before the age of 22 was never something I thought I would face. But through the ups and downs, I found motivation in giving back to my community."

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I Thought I Had CF Under Control. Then I Was Diagnosed With CF-Related Diabetes

By Lauren Harvey, an adult with CF

"When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes."

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Calling for Expanded Prenatal Testing

By Roxanne Goforth, mother of a child with CF

"My son's cystic fibrosis diagnosis blindsided me after a negative prenatal screening. More effective genetic testing would have given my family the chance to prepare."

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