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May 2025



CF Foundation Community Blog Digest


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My Experience Advocating for My CF Patients

By Aaron Trimble, a CF physician

"As a CF physician, I recently had the opportunity to advocate on Capitol Hill for the first time. This experience deepened my commitment to my patients and gave me a powerful new way to support the CF community."

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Navigating the Realities of Adult Life With CF

By Patrick Allen Brown, an adult with CF

"When I was first diagnosed with CF, I wasn't supposed to live past the age of 8. Then Trikafta gave me the chance for a future I wasn't prepared for. I've built a new life for myself and learned to embrace the challenges of adult life."

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The Challenges and Triumphs of Aging With CF

By Pete Proimos, an adult with CF

"Growing older with CF is an unexpected, sometimes miraculous, and often daunting journey. But for all the challenges it brings, it also means we are redefining what it means to live with CF."

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Caring for My Children With CF -- And Learning to Care for Myself

By Jacqueline Capriotti, parent of children with CF

"When my two children were diagnosed with CF, our lives were overtaken by treatments, hospital stays, and endless medications. The strain wasn't just physical -- it also deeply affected our mental health. It was then when I truly understood how vital it is for caregivers to protect their own well-being."

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