Stay connected with the latest stories from the CF community


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April 2025

CF Foundation Community Blog Digest

We're excited to bring you monthly updates featuring the latest CF Community Blog stories -- written by the community, for the community. These personal insights and experiences from people living with or impacted by cystic fibrosis aim to inform, inspire, and connect. Read the latest stories and stay tuned for more!


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My Unexpected Experience With Trikafta

By Emily Trout, an adult with CF

"I got dangerously sick while waiting for double-lung and liver transplants. But then I got a second chance at life after starting Trikafta, even though I have two rare mutations."

Read Emily ([link removed])




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Navigating My Son's Sudden Pancreatitis

By Stacy Olstadt, parent of a teen with CF

"For years, my son grew up as a perfectly healthy kid, despite being diagnosed with CF-related metabolic syndrome. But when he suddenly developed pancreatitis, I had a hunch it was actually related to cystic fibrosis."

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Raising a Child With Cystic Fibrosis

By Alexis Martinez, parent of a child with CF

"After my son, Julius, was diagnosed with cystic fibrosis, I adjusted to his daily treatments and medical routines, and though I feel guilt and sadness seeing him becoming so familiar with his CF equipment, I'm learning to embrace our new normal."

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It's OK to Not Be OK

By Jeremy Dieck, an adult with CF

"Living with CF -- and undergoing a double-lung transplant -- is extremely difficult physically and mentally. But with help from my support system, I've fostered a positive mindset that drives me to continue the fight."

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