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, we truly can’t thank you enough.

Your support makes promising, cutting-edge research, like the CURE Epilepsy Discovery ([link removed]) below, happen while enabling us to provide evidence-based resources to the epilepsy community. Just last month alone, you made all of this possible:

👩‍🦰 Highlighting challenges and considerations ([link removed]) facing women with epilepsy and creating a guide ([link removed]) to help start important conversations with their care team.

💪 Telling stories of resilience, determination, and hope, including that of the remarkable Channing ([link removed]) .

🌎 Rounding up of epilepsy research news ([link removed]) from around the world.

🎙️ Launching a new episode of the Seizing Life®️ podcast ([link removed]) about a doctor’s decade-long diagnostic odyssey.

🧠 Detailing what an epilepsy monitoring unit is, who might benefit, and what happens there in our latest Epilepsy Explained video ([link removed]) .

These resources have already been viewed by thousands of people and will continue helping people with epilepsy and their loved ones for many weeks to come. You can ensure community resources like these and scientific advancements like the ones described below continue into the future with a gift today. ([link removed])

Thank you for standing with us, side by side, to create a seizure-free world by finding a cure for epilepsy.

With gratitude,

Sania Sufi

Manager of Individual Giving

PS: You can sustain groundbreaking epilepsy research all year long by becoming a monthly donor! ([link removed]) Our monthly donors provide the reliable, consistent funding we need to bring our vision of a seizure-free world to life.


** CURE Epilepsy Discovery
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** Dishes of Discovery
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Brain organoids grown from human cells offer insights into rare epilepsies
Full Article ([link removed])

For most parents, their child’s fifth birthday marks a happy milestone. But for Tommy Pham, it is a bittersweet one for his son Raiden. He was born with a mutation in the UBA5 gene, which is critical for protein manufacturing and processing within cells. As a result, Raiden cannot sit, walk, talk, or feed himself, and requires 24/7 care.

Raiden’s uncertain future, combined with a lack of science surrounding his ultra-rare condition, spurred Tommy and his wife, Linda, to form the Raiden Science Foundation ([link removed]) (RSF). The foundation networks with scientists and fundraises to support research on UBA5 Disorder, including building a patient network, creating animal models, repurposing drugs, and creating a gene therapy.

RSF, through a grant in partnership with CURE Epilepsy ([link removed]) , is also banking on another method to directly study the effects of UBA5 mutations in human brain cells: brain organoids.


** Beyond Animal Models: Creating a Human “Brain in a Dish”
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Grown in the laboratory from skin cells, brain organoids are three-dimensional structures designed to mimic the cellular composition and architecture of the developing brain, allowing researchers to study the brain “in a dish” in the lab. They contain many types of brain cells, like neurons and astrocytes, which connect with each other as cells do in the human brain.

Growing organoids involves a multi-step process of transforming skin cells into induced pluripotent stem cells (iPSCs), which have the potential to be made into any kind of cell in the body. Scientists can then direct the iPSCs to grow into different sorts of brain cells, that can be maintained and studied for over 100 days in laboratory dishes.
Continue reading this article and learn about CURE Epilepsy’s funding of organoid research across the epilepsies ([link removed])

“We’re helping to develop a platform and skills for other rare diseases, too. We want to fight for expanding knowledge, for research, for potential care in the future. The best way to describe it is that we’re fighting for hope.”

— Tommy Pham, Raiden’s Dad

Fuel scientific discovery with a gift today.
Donate ([link removed])
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Our mission is to fund breakthrough research that will transform the lives of people with epilepsy as we lead the search for a cure. CURE Epilepsy is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.

Copyright (C) 2025 CURE Epilepsy. All rights reserved.
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