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The Autistic Self Advocacy Network is disappointed by the confirmation of Robert F. Kennedy Jr. as Secretary of the Department of Health and Human Services. Kennedy has a long record of spreading misinformation about autism in particular and public health in general. He is an unqualified and dangerous choice for this role. Autistic people, the disability community, and the nation’s public health are all placed at major risk as a result of this confirmation.

RFK Jr. is the founder of Children’s Health Defense, a prominent anti-vaccine group. He has claimed that no vaccine has been proven safe and effective, that the recommended vaccine schedule for children is dangerous, and that “autism does come from vaccines.” He has also fought against COVID-19 vaccination, falsely calling an early COVID vaccine “the deadliest vaccine ever made.”

Vaccines are safe and effective. Vaccines do not cause autism. The idea that the measles, mumps and rubella (MMR) vaccine is linked to autism comes from one fraudulent 1998 publication claiming that the vaccine had caused autistic traits in 12 children. Andrew Wakefield, who wrote this publication, used unethical methods and failed to disclose financial conflicts of interest. The paper did not give enough evidence for its claim that the MMR vaccine could cause autism. It was later removed by the journal that published it, and Wakefield had his medical license revoked.

Despite decades of replicable research proving that this is not true, some people, like Kennedy, continue to spread this lie. These lies do very real harm to the autistic community. Kennedy has described autistic people in insulting ways meant to inspire fear, saying that “their brain is gone” and that the purported effects of vaccination are “a Holocaust.” By working to prevent childhood vaccination, he effectively communicates the message that living as an autistic person is a worse fate than dying of measles or pertussis.

Kennedy has also made false claims about COVID-19 vaccine trials and about the Vaccine Adverse Event Reporting System, blaming unrelated deaths on COVID vaccinations. Anti-vaccine misinformation like that promoted by Kennedy’s group has led to a reduced rate of childhood vaccinations in the United States since the beginning of the COVID-19 pandemic.

Kennedy’s lies about vaccines harm others as well. Kennedy and his nonprofit played an active role in a recent measles outbreak in Samoa, spreading vaccine misinformation until the vaccination rate dropped low enough that 5,700 people were infected with measles, and 83 people died. When he was asked about this outbreak during his confirmation hearing, Kennedy said that he didn’t believe the people who died had measles, a claim that the top health official for Samoa has called “a complete lie.”

The anti-vaccine movement has led to a wave of fake “autism cures,” many of which have very real health risks. Kennedy recently promoted two of these fake cures when he accused the FDA of suppressing “hyperbaric therapies, chelating compounds.” Hyperbaric therapy, a treatment for decompression sickness in divers, has been promoted as a fake autism cure in spite of a complete lack of evidence and associated health risks. Chelation, a treatment for heavy metal poisoning, is another fake cure, and its off-label use for autism has been associated with at least one death.

Autistic people have always been here, but before widespread autism diagnosis, we either went undiagnosed, or received different diagnoses than would be used today -- for example, the outdated diagnosis of “childhood schizophrenia” for autism, or diagnosing people who today would only have an autism diagnosis with intellectual disability. Autistic people in Kennedy’s generation were often institutionalized or incarcerated. Even if Kennedy did not see us, that does not mean we were not there.

Kennedy has taken other stances on public health, also based on misinformation, that disproportionately harm disabled people. He has opposed COVID-19 vaccination when people with intellectual and developmental disabilities (IDD) are at risk for worse outcomes if we get COVID. He wants to take fluoride out of drinking water, making everyone’s dental health worse, when people with IDD have worse dental health outcomes to begin with.

He is against the use of medication for ADHD in spite of research demonstrating that these medications are safe and can prevent deaths among people who take them. He has falsely linked antidepressants, which for many people are life-saving medication, to mass shootings. None of these beliefs are based on evidence, and all of them would make terrible public health policy.

Kennedy’s fringe beliefs have led him to propose some truly disturbing disability policies. He has discussed sending people who struggle with addiction or take psychiatric medications to “wellness farms,” where they could labor for several years and would be forbidden to use cell phones. In the autism community, we have seen farms promoted as a housing solution before, and we recognize this idea for what it is: a proposal to institutionalize the 16% of Americans who take psychiatric medication and the 16% of Americans who struggle with substance use.

Kennedy’s commitment to spreading misinformation about public health extends beyond developmental disability. He claims that drinking raw milk has health benefits at a time when bird flu is spreading and foodborne diseases like listeria are becoming more common. He has suggested that AIDS may not be caused by HIV, and has participated in transphobic fear-mongering by claiming that chemicals in drinking water may change children’s gender identity. Once again, there is no evidence for any of these beliefs.

At an anti-vaccine conference last year, Kennedy said that if he became President, he would tell the National Institutes of Health, “Thank you for public service. We’re going to give infectious disease a break for about eight years.” Instead, he pledged to focus NIH’s efforts entirely on chronic disease like diabetes. Pivoting government research away from infectious diseases during the ongoing COVID-19 pandemic would have disastrous consequences. And Kennedy’s claim that he will focus on chronic disease is short-sighted — chronic disease is often caused or worsened by infectious diseases like COVID. Diseases don’t take a break from threatening our lives and health, and we shouldn’t take a break from trying to prevent and mitigate diseases.

The worst public health harms in US history have been inflicted on marginalized communities when our public health systems “took a break” from protecting us. In the same way, marginalized communities would bear the brunt of a decision to abandon HHS’ responsibility to study infectious diseases.

We are dismayed by RFK Jr. becoming Secretary of HHS because the policies he supports will harm many people. This is especially true for autistic people. It is an embarrassment that our leaders chose to put RFK Jr. in a position to oversee public health given his rejection of science and his comments about autism. Our autistic lives are worth living. Our lives are worth saving. Our officials must recognize both.

The Autistic Self Advocacy Network seeks to advance the principles of the disability rights movement with regard to autism. ASAN believes that the goal of autism advocacy should be a world in which autistic people enjoy equal access, rights, and opportunities. We work to empower autistic people across the world to take control of our own lives and the future of our common community, and seek to organize the autistic community to ensure our voices are heard in the national conversation about us. Nothing About Us, Without Us!

Autistic Self Advocacy Network

PO Box 66122
Washington, DC 20035

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