December 12, 2024

CF Research Update

The Cystic Fibrosis Foundation has agreed to invest up to $15 million in ReCode Therapeutics to fund the development of a gene editing therapy for people with CF.  

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COST-CF Survey Results Now Available  

Earlier this year, we asked you to share your experiences with health care costs and how those costs may impact you and your family. You generously shared your experiences, and the results showed that though each person’s journey with cystic fibrosis can look different, the burden associated with the disease can be felt regardless of geography, income, and insurance coverage.   

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Your Feedback Matters

Have you let your care team know about your clinic experience? Care teams use anonymous feedback from you and others who attend your care center to identify areas for improvement. Your care team may gather this feedback from you with a short and easy online survey, called the Experience of Care. If your care team hasn’t asked you to participate, ask to take it.  

About the survey »

From the CF Community Blog: Optimism in the Face of Transplants

When Andrea Becker received a double-lung transplant as a young adult, her unwavering optimism carried her through the challenging moments. Today, as she approaches a second transplant, she shares how her attitude has matured as she works to accept a new reality.  

Read Andrea's story »