CURE - Citizens United for Research in Epilepsy
Beth Lewin Dean Greetings, CURE community! The COVID-19 pandemic and our knowledge of the coronavirus continue to evolve. As more information hits headlines, we wanted to give you a way to stay up to date on how this situation is impacting the epilepsy community while providing helpful resources. On our new COVID-19 resource hub ([link removed]) , you can find our guide ([link removed]) on preparing for and getting the most out of virtual doctor visits, frequently asked questions, helpful podcast episodes, and more.
We will continue to monitor the impacts of COVID-19 but know that we remain laser-focused on finding a cure for epilepsy. We are in this for the long haul, and we are only able to continue this work because of the generosity of you, our supporters. Our funded research projects remain active, and we look forward to awarding new grants in the coming months. For a full update on the status of CURE’s research, please click here ([link removed]) .
Below, please find additional resources and opportunities to support epilepsy research through participation, awareness, and education:
* Webinar: Transforming Data into Seizure Control with Learning Healthcare Systems ([link removed])
* Donate Now: Increased Tax Benefits for Donations in 2020 ([link removed])
* CURE Discovery: “Big Data” Approach Identifies Protein that Protects Against Epileptogenesis ([link removed])
* New from the Seizing Life® Podcast ([link removed])
* National Institute of Health (NIH) Survey on Healthcare Disparities – Participate Now ([link removed])
Be well,
Beth Lewin Dean
Beth Lewin Dean, CEO
** [link removed]: Transforming Data into Seizure Control with Learning Healthcare Systems
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Register ([link removed])
Doctors, researchers, patients, and families are collaborating to create a pediatric “learning healthcare system” in order to improve outcomes in children with epilepsy. In our webinar on Thursday, May 14 at 12:00PM CT, discover how this comprehensive, data-driven approach could lead to better guidelines, more consistent treatment, and increased seizure freedom for children.
Our Leaders in Epilepsy Research Webinar Series is made possible by the generous support of the BAND Foundation.
** [link removed] Donate Now: Increased Tax Benefits in 2020
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Learn More ([link removed])
The Coronavirus Aid Relief and Security Act (CARES Act) recently passed by Congress includes a new universal tax deduction for qualified charitable contributions in 2020. Individuals and corporations may now receive increased tax benefits when they support nonprofit organizations such as CURE, even if they claim the standard tax deduction. Your donations advance our mission and support the research we fund, and now your contribution may also lower your taxes. Please consider taking advantage of this win-win! ([link removed])
** [link removed] CURE Discovery: “Big Data” Approach Identifies Protein that Protects Against Epileptogenesis
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Learn More ([link removed])
Dr. Avtar Roopra and his team used a “big data” approach to understand how epilepsy develops following an initial “insult” to the brain. To do so, the team analyzed an astronomical amount of data to identify a protein called EZH2, which determines when thousands of genes are “turned on” or “turned off”. These findings suggest that this protein may protect the brain from seizures and epilepsy.
** [link removed] from Seizing Life^®, a CURE Podcast
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Listen or Watch ([link removed])
Catch up on the latest episodes of the Seizing Life podcast where we discuss:
* The role of NINDS in epilepsy research.
Listen or Watch ([link removed])
* How one family is managing medically complex healthcare during the COVID-19 pandemic.
Listen or Watch ([link removed])
* How comprehensive epilepsy care and public education has started to make a difference for the epilepsy community.
Listen or Watch ([link removed])
** [link removed] Institute of Health (NIH) Survey on Healthcare Disparities – Participate Now
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Take Survey ([link removed])
To address healthcare disparities and inequities among people with neurological conditions, NIH needs input from patients, caregivers, and family members like you! NIH hopes to use your input and perspective to close the gaps in neurological care, outcomes, treatment, access and provision of services, and research.
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Our mission is to find a cure for epilepsy, by promoting and funding patient-focused research. CURE is a non-profit 501(c)(3) tax-exempt organization. Our tax identification number is 36-4253176.
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Our mailing address is:
Citizens United for Research in Epilepsy (CURE)
420 Wabash Ave, Ste 650
Chicago, IL 60611
USA
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In the past you provided Citizens United for Research in Epilepsy your email address. Occasionally, you will receive updates from CURE about epilepsy research and news.
