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Human Biotech is in the News: We Need to Talk
Pete Shanks, Biopolitical Times | 09.25.2024
In the current presidential campaign, the battle over abortion has swelled and morphed to encompass IVF. Meanwhile, rapidly evolving discussions are tackling some of the more complicated facets of new reproductive technologies and those yet to come.
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Welcome, CGS interns!
Two fantastic undergraduate interns from the Health Sciences Internship program at UC Berkeley have joined CGS for fall semester: Maddie Grieb, a Psychology major, and Charisse Chih, a Molecular and Cell Biology major and Global Public Health and Data Science minor. Learn more about Maddie and Charisse, and what they hope to learn in their time at CGS.
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Update on Polling about Human Biotechnologies
Pete Shanks, Biopolitical Times | 08.26.2024
The latest update to CGS’ compilation of polls on biotechnologies includes new academic surveys that assess public views of heritable genome editing and polygenic risk scores for embryo selection.
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Podcast interview with Emily Galpern
CGS consultant Emily Galpern was interviewed by Isabelle Bartram on the Gen-ethische Netzwerk (GeN) podcast Hingehört & Nachgefragt. In the episode "Menschen vor Profite!" ("People before Profit!"), Emily and Isabelle discuss the groundbreaking social justice principles on heritable genome editing produced by CGS' Gender Justice and Disability Rights Coalition. Listen to the interview (in English - after a short introduction in German) on Spotify and check out the whole podcast series on the GeN website.
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GENE THERAPY | GENE EDITING | EUGENICS | TECHNO-EUGENICS
ASSISTED REPRODUCTION | SURROGACY360 | VARIOUS
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What’s the Meaning of ‘Cure’ in Gene Therapy?
Don Sapatkin, Managed Healthcare Executive | 09.20.2024
The contested concept of “cure” is frequently invoked in discussion of gene therapies. New research examines different definitions of the term and challenges its use in clinical conversations on gene therapy.
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Sickle cell disease in India: The quest for a cure
Priyanka Runwal, Chemical and Engineering News | 08.05.2024
Recently approved gene therapies for sickle cell disease prove promising as a new treatment, but their price tags mean they are out of reach in lower- and middle-income countries including India, where the disease is prevalent.
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What are the lines and who draws them?: The CRISPR-Cas9 story
Sara Moretto, Varsity | 09.22.2024
While discussions of heritable genome editing often focus on the science, it has just as much to do with societal attitudes toward illness and disability. Attempts to edit the human genome, which risk off-target effects and serious complications, are often driven by a preoccupation with achieving “normalcy.”
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The Power and Potential of Gene Tuning
Fyodor Urnov, Time | 08.12.2024
Research suggests that disease develops from discordant gene expression. “Gene tuning” treatments would draw on epigenetics to change how and when genes are expressed.
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Live Free or DEI
Gaby Del Valle, The Baffler | 09.18.2024
The Right’s recent embrace of hereditarianism and natalism suggests that eugenic thinking is once again ascendant beyond the fringes.
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‘Racialized Myths,’ Medical Exploitation, and Dire Results
Kylie Marsh and Herbert L. White, The Charlotte Post | 08.31.2024
False, racialized myths about Black women’s bodies have long been used to support their mistreatment, from gynecological experimentation in the 19th century to eugenics in the 20th century. The legacies of these entrenched ideas contribute to current racial disparities in maternal and fetal outcomes.
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The Far Right Is Becoming Obsessed With Race and IQ
Ali Breland, The Atlantic | 08.20.2024
Race science has long been quietly popular on the fringes of the far right, but with Elon Musk at the helm of X and Donald Trump running for president once again, peddlers of race science are now openly embraced.
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Want a girl with blue eyes? Inside California’s VIP IVF industry
Megan Agnew, The Times | 09.15.2024
Fertility clinics in California are providing IVF to parents who want to select the sex and eye color of their future children. Given the lack of regulation of these practices and profit incentives to expand them, bioethicist Art Caplan predicts that “we will eventually go into eugenic use.”
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The World Isn’t Ready for What Comes After I.V.F.
Ari Schulman, The New York Times | 09.09.2024
While there is wide support for IVF, new techniques like lab-made gametes (“in vitro gametogenesis”), when championed by “Silicon Valley overlords,” may prompt public scrutiny.
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Yale Settles With Patients Who Sued Over Painful Egg Retrievals
Sarah Kliff, The New York Times | 09.09.2024
Dozens of patients filed a lawsuit against Yale after enduring excruciatingly painful egg retrieval procedures because a nurse at its fertility clinic secretly swapped their anesthesia for saline. Now they will receive substantial compensation.
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Surrogacy, a booming business in Georgia
La Croix International | 09.10.2024
In part due to the war in Ukraine, demand for surrogacy in nearby Georgia has surged, so much so that there is a shortage of surrogates. In response, clinics have recruited people from Central Asia, whom they pay less for the same services.
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