Help guide the Foundation's work in the years ahead


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# September 19, 2024



Help Inform the Foundation's Priorities

To continue accelerating toward our mission to cure cystic fibrosis and provide all people with CF the opportunity to live long, fulfilling lives, the Foundation is developing our next long-term strategic plan, and it is important that the plan reflects the diverse needs of the CF community.
You can help guide the Foundation’s work ([link removed])
in the years ahead by taking a 10-minute survey. Share your feedback by October 16.

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CF Foundation Continues Seeing Improvements in CF Newborn Screening

Because early diagnosis and intervention play critical roles in staving off disease progression in babies born with CF, the Foundation continues its ongoing advocacy to improve newborn screening for CF. Recently, we reflected on the ongoing progress, including
developing recommendation guidelines to improve screening methods within state programs ([link removed]).

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Get Help With CF Foundation Compass

Compass is a free, one-on-one service that provides personalized support for people with CF, including answering insurance questions, addressing coverage issues, or identifying a plan that meets your needs. Whether you prefer to reach out by phone or submit an online service request, dedicated case managers are available to assist you in both English and Spanish. Don't navigate your CF journey alone --
reach out to Compass today ([link removed])
and find the resources and support you need.

Contact Compass » ([link removed])


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Why We Chose Not to Have Children

Despite the challenges of cystic fibrosis, Adam Lucas and his wife planned to build a family together. However, after being confronted with the tragic realities of CF, their priorities shifted. On the CF Community Blog,
Adam describes their new focus is on leaving a different kind of legacy ([link removed]).

Read Adam ([link removed])


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