ASAN welcomes the removal of Section 722 from the Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Appropriations Act. In June, some members of Congress introduced a rider to the act that would stop the FDA from banning electric shock devices for behavior modification, such as the devices used at the Judge Rotenberg Center. Section 722 said the FDA cannot ban a device that is used by court order. All of the electric shock devices used at the Judge Rotenberg Center are used because of a court order.

If this rider had passed, it would have taken away the FDA’s power to move forward with the proposed rule that ASAN and many grassroots advocates commented to support. Because of your powerful activism, this rider failed to make it into the final bill, and the FDA still has the power to #StopTheShock.

This was only possible thanks to the hard work of our grassroots. You called, emailed, and shared across social media to make your voices heard. Members of our community have fought to end the use of shock devices at the JRC for over a decade, and we will not be ignored. Your calls, along with the hundreds of public comments sent in support of the FDA’s proposed rule, have gotten us that much closer to ending this tortuous practice once and for all. 

We also thank the many members of the House Appropriations Committee who supported removing Section 722. At last night’s markup of the bill, Ranking Member Rosa DeLauro and Representatives Chellie Pingree and Debbie Wasserman-Schultz all used their opening remarks to point out the harm this rider would have caused, and the urgent need to remove it. Subcommittee Ranking Member Sanford Bishop spoke in his remarks about our community’s work to educate the Committee members on this issue. We are thrilled that the House Appropriations Committee listened to our community on this urgent issue and acted to protect disabled people from torture.

We are grateful that this rider did not make it into the current version of the bill, but the fight isn’t over yet. The full House of Representatives, and the Senate, still need to vote on this bill. Thanks to your efforts, we have built strong bipartisan opposition to Section 722. We will continue to work with Congress to make sure this rider stays out of the final bill. Meanwhile, the FDA still needs to do their part with the power our community fought for them to keep. ASAN calls upon the FDA to swiftly release the final version of their proposed rule “Banned Devices; Proposal to Ban Electrical Stimulation Devices for Self-Injurious or Aggressive Behavior.”

The Autistic Self Advocacy Network seeks to advance the principles of the disability rights movement with regard to autism. ASAN believes that the goal of autism advocacy should be a world in which autistic people enjoy equal access, rights, and opportunities. We work to empower autistic people across the world to take control of our own lives and the future of our common community, and seek to organize the autistic community to ensure our voices are heard in the national conversation about us. Nothing About Us, Without Us!

Autistic Self Advocacy Network

PO Box 66122
Washington, DC 20035

 

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