June 27, 2024

Updated Median Predicted Survival for People With CF in the U.S.

For people with cystic fibrosis born between 2019-2023, the median predicted survival age is 61, according to 2023 Patient Registry data. While we are proud of this continued improvement, we know this does not represent everyone’s experience with CF. Understand how this number is calculated and explore frequently asked questions about this topic. 

What this number means »

Update Your Emergency and Natural Disaster Plan 

An emergency or natural disaster can occur at any time. That’s why it is important to revisit your preparedness plan annually to ensure all supplies and information are up to date. Our emergency and natural disaster preparedness guide can help take the guesswork out of creating or updating a plan for you or your loved one with CF. 

Create or update your plan »

Make a New Connection This Summer With CF Peer Connect

Whether you’re adjusting to a new routine, planning to travel with family, or preparing to start college, the CF Peer Connect team can connect you with someone who understands your current stage of life. CF Peer Connect is for people with CF and their family members, ages 16 and older, who want to share and learn from someone who has been through similar situations.  

Get connected »

Learning How to Live on a Fixed Income

It was hard for Marieliz Landa to accept that having cystic fibrosis limited her finances as well as her body. On the CF Community Blog, she shares how accepting her limitations helped her learn how to live on a fixed income and ask for help when she needed it.  

Read Marieliz's story »