Explore the results from our Adapting CF Care survey


([link removed])


# May 16, 2024



Adapting CF Care Survey Results

Last fall we conducted the Adapting CF Care survey to help inform how the care that people with cystic fibrosis receive could adapt to best meet their needs.
The survey results highlighted ([link removed])
several important themes and influenced the development of two position papers that will provide interim guidance on the CF care model and care team structure.

Explore the results » ([link removed])


([link removed])




Save the Date: June 5 (6/5) is 65 Roses Day!

Since 1965, the term "65 Roses" has been used by children of all ages to describe cystic fibrosis. But, making the disease easier to say doesn't make living with CF any easier. On 65 Roses Day, June 5 (6/5), you can help change that.
Learn the story behind the term ([link removed]), and how you can make a difference for the CF community on 65 Roses Day.

Read the 65 Roses story » ([link removed])


([link removed])




May is Mental Health Awareness Month


Mental Health Awareness Month is observed in May ([link removed])
to shed light on the challenges so many experience, emphasize the importance of support, and reduce the stigma surrounding it. Life with cystic fibrosis can be emotionally challenging, and people with CF, or those who care for someone with CF, are more likely to experience clinical depression or anxiety. Talk to your doctor to determine if you or your child can benefit from help.

Understand the signs and symptoms » ([link removed])


([link removed])




Explore Our Navigating CF Series

Health insurance can be complicated, especially when you have to navigate a new plan after a major life change. You're not alone.
Our Navigating CF series ([link removed])
can help you understand the basics of health insurance, what options are available, and how to make sure your CF care is covered.

Watch the series » ([link removed])


([link removed])


Support ([link removed])•
Get Involved ([link removed])
•
CF Community Blog ([link removed])


([link removed])


www.cff.org ([link removed])

www.cff.org en español ([link removed])


4550 Montgomery Avenue, Suite 1100N | Bethesda, MD 20814 US



DONATE ([link removed])


([link removed])
([link removed])
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]
% link:[link removed] name="[link removed]" content="" %]


Update ([link removed])
your email interests

[Opt out]([link removed]) of this mailing list

Opt out ([link removed])
out of all CF Foundation emails

This email was sent to [email protected]

Got this as a forward? [Sign up]([link removed]) to receive our future emails.